Quality indicators of end-of-life cancer care from the bereaved family members' perspective in Japan.
Quality indicators of end-of-life cancer care from the bereaved family members' perspective in Japan.
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从日本死者家属的角度来看，临终癌症护理的质量指标。
DOI：
10.1016/j.jpainsymman.2008.05.015
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发表时间：
2009
影响因子：
4.7
通讯作者：
Y. Uchitomi
中科院分区：
文献类型：
--
作者：
M. Miyashita;T. Morita;T. Ichikawa;Kazuki Sato;Y. Shima;Y. Uchitomi
虽然已经进行了几项关于临终（EOL）癌症护理质量指标（QIs）的研究，但在日本还没有调查丧亲家属对QIs的看法。本研究的主要目的是从日本丧亲家属的角度对终末期癌症护理的QIs进行评级。一个横断面的匿名问卷调查管理的癌症患者谁死在日本的姑息治疗病房的丧亲家属。我们于2007年3月向潜在的受访者邮寄了调查问卷。在发出的160份问卷中，分析了109份答复（有效答复率，76%）。88%的参与者积极评价姑息治疗团队或专家的医疗检查，80%的参与者积极评价急诊室（ER）服务或下班后检查的可用性，77%的参与者同意减轻疼痛或痛苦的医疗命令记录在图表中。只有15%的受访者认为死在家里更好。此外，59%和46%的参与者同意跌倒或压疮的发生以及手术或化疗不良事件导致的死亡分别是不良QIs。此外，分别只有17%和14%的人将化疗至死亡的短时间间隔和频繁的急诊室就诊或下班后检查评定为不良QIs。在日本，从病历中提取QIs是合适的。然而，许多项目建议作为QIs在以前的研究中被发现是不同的意见所表达的丧亲家庭成员在这项研究中。
Although several studies about quality indicators (QIs) in end-of-life (EOL) cancer care have been conducted, the bereaved family members’ perspective of QIs has not been investigated in Japan. The primary aim of this study was to rate QIs for EOL cancer care from the bereaved family members’ perspective in Japan. A cross-sectional anonymous questionnaire was administered to bereaved family members of cancer patients who had died in an inpatient palliative care unit in Japan. We mailed questionnaires to potential respondents in March 2007. Of 160 questionnaires sent, 109 responses were analyzed (effective response rate, 76%). Eighty-eight percent of participants rated the medical examination by the palliative care team or specialist positively, 80% rated the availability of emergency room (ER) services or after-hour examinations positively, and 77% agreed that medical orders to alleviate pain or suffering were documented in the chart. Only 15% of the respondents agreed that it was preferable to die at home. Additionally, 59% and 46% of participants agreed that the occurrence of a fall or pressure ulcer and death by an adverse event from surgery or chemotherapy were poor QIs, respectively. Moreover, only 17% and 14% rated the short interval from chemotherapy to dying and frequent visits to the ER or after-hour examination as poor QIs, respectively. In Japan, it would be appropriate to extract QIs from medical charts. However, many items suggested as QIs in a previous study were found to be different from the opinions expressed by bereaved family members in this study.