Fighting a losing battle: eating-related distress of men with advanced cancer and their female partners. A mixed-methods study
Fighting a losing battle: eating-related distress of men with advanced cancer and their female partners. A mixed-methods study
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DOI：
10.1177/0269216307076346
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发表时间：
2007-01-01
影响因子：
4.4
通讯作者：
Kesselring, A.
中科院分区：
文献类型：
--
作者：
Strasser, F.;Binswanger, J.;Kesselring, A.
背景资料：厌食症/恶病质是晚期癌症的常见并发症，对患者和家庭成员的心理社会影响-或饮食相关的痛苦（ERD）-知之甚少。为了帮助姑息治疗从业者管理这一重要的社会心理方面的护理，我们的目的是发现和描述ERD的元素，重点是男性晚期癌症患者和他们的女性伴侣。研究方法：本研究以19位男性病患及其伴侣为研究对象，采用焦点团体访谈法及扎根理论的资料分析法，并以分类问题进行比较研究。结果如下：对于患者，进食相关的痛苦的特点是进食障碍，食欲不振和反复无常，口腔摄入和体重增加能力的断开，以及持续进食的努力。合作伙伴表达了深切的关注，挫折感，在他们的爱和创新的努力，准备吸引人的食物不足。伴侣比患者自己更关心患者的体重减轻（P =0.002）。患者从伴侣那里感受到的进食压力比他们估计的要大（P =0.007）。结论：男性癌症患者的厌食症/恶病质影响家庭烹饪、夫妻日常饮食习惯和夫妻关系。识别ERD可能会引发有针对性的心理干预。
Background: Anorexia/cachexia is a frequent complication of advanced cancer with poorly understood psychosocial impact - or eating-related distress (ERD) - on both patients and family members. To assist palliative care practitioners manage this important psychosocial aspect of care, we aimed to discover and describe elements of ERD, focusing on male patients with advanced cancer and their female partners. Methods: Nineteen male patients and their partners were systematically investigated by (1) focus group interviews and data analysis inspired by Grounded Theory, and (2) a comparative survey with categorical questions. Results: For patients, eating-related distress was characterised by obstruction to eating, poor and capricious appetite, a disconnection of oral intake and ability to gain weight, and continuous efforts to eat. Partners expressed feelings of deep concern, frustration, and insufficiency in their loving and innovative efforts to prepare appealing food. Partners were more concerned about patients' weight loss than patients themselves (P =0.002). Patients felt more pressure to eat from partners than they estimated (P =0.007). Conclusion: Anorexia/cachexia of male cancer patients affects the cooking at home, a couple's daily eating routines, and their spousal relationship. Identification of ERD may trigger targeted psychosocial interventions.