Acceptability of Telegenetics for Families with Genetic Eye Diseases.
Acceptability of Telegenetics for Families with Genetic Eye Diseases.
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DOI：
10.3390/genes12020276
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发表时间：
2021-02-15
期刊：
影响因子：
3.5
通讯作者：
Moosajee M
中科院分区：
文献类型：
--
作者：
Bell S;Karamchandani U;Malcolmson K;Moosajee M
全球各地的医疗服务提供者已实施远程常规会诊，以尽量减少COVID-19疫情期间的干扰。虚拟诊所特别适合遗传性眼病患者，因为他们依赖于详细的病史和遗传咨询。在2019年4月至6月期间，对参加Moorfields眼科医院NHS基金会信托（MEH）眼部遗传学服务的遗传性眼病儿童的护理人员的意见进行了调查。65%的家庭（n = 35/54）更愿意在当地进行调查，而不是前往MEH，64%的家庭选择虚拟咨询来解释结果。最受欢迎的远程联系方式是通过电话（14/31），视频通话最不受欢迎（8/31）。因此，我们联系了54个在大流行期间（2020年11月至2021年1月）接受过电话咨询的家庭，使用临床遗传学满意度指标和远程医疗满意度问卷重新评估远程遗传学的可接受性。总体而言，50名护理人员参与（响应率93%）; 58%的参与者认为远程咨询是可以接受的，54%的人同意他们增加了获得护理的机会，但67.5%的人更喜欢亲自去看。患者满意度很高，90%的患者非常同意/同意他们分享并收到所有必要的信息。眼部遗传学非常适合远程服务，最好与面对面的咨询交替进行。
Healthcare providers around the world have implemented remote routine consultations to minimise disruption during the COVID-19 pandemic. Virtual clinics are particularly suitable for patients with genetic eye diseases as they rely on detailed histories with genetic counselling. During April–June 2019, the opinion of carers of children with inherited eye disorders attending the ocular genetics service at Moorfields Eye Hospital NHS Foundation Trust (MEH) were canvassed. Sixty-five percent of families (n = 35/54) preferred to have investigations carried out locally rather than travel to MEH, with 64% opting for a virtual consultation to interpret the results. The most popular mode of remote contact was via telephone (14/31), with video call being least preferred (8/31). Hence, 54 families who had received a telephone consultation mid-pandemic (November 2020–January 2021) were contacted to re-evaluate the acceptability of telegenetics using the Clinical Genetics Satisfaction Indicator and Telemedicine Satisfaction Questionnaire. Overall, 50 carers participated (response rate 93%); 58% of participants found teleconsultations acceptable and 54% agreed they increased their access to care, but 67.5% preferred to be seen in person. Patient satisfaction was high with 90% strongly agreeing/agreeing they shared and received all necessary information. Ocular genetics is well-suited for remote service delivery, ideally alternated with face-to-face consultations.
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影响因子：
3.7
作者：
Klouwer FC;Berendse K;Ferdinandusse S;Wanders RJ;Engelen M;Poll-The BT
通讯作者：
Poll-The BT
影响因子：
13.7
作者：
Patel LG;Peck T;Starr MR;Ammar MJ;Khan MA;Yonekawa Y;Klufas MA;Regillo CD;Ho AC;Xu D
通讯作者：
Xu D
影响因子：
4.1
作者：
Kortuem, Karsten;Fasler, Katrin;Sim, Dawn A.
通讯作者：
Sim, Dawn A.
DOI：
10.2147/opth.s80487
发表时间：
2016
期刊：
Clinical ophthalmology (Auckland, N.Z.)
影响因子：
--
作者：
Sreelatha OK;Ramesh SV
通讯作者：
Ramesh SV
影响因子：
7.4
作者：
Ramaswamy A;Yu M;Drangsholt S;Ng E;Culligan PJ;Schlegel PN;Hu JC
通讯作者：
Hu JC