COVID-19: Public and patient involvement, now more than ever.
COVID-19: Public and patient involvement, now more than ever.
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DOI：
10.12688/hrbopenres.13067.1
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发表时间：
2020-01-01
影响因子：
--
通讯作者：
Dinneen, Sean
中科院分区：
文献类型：
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作者：
Murphy, Edel;Tierney, Edel;Dinneen, Sean
研究界正在快速应对 COVID-19 大流行，通过快速响应机制来资助研究、缩短申请周转时间并加快研究伦理流程。在这项快速反应研究中，公众和患者参与 (PPI) 面临着压力，研究人员和资助者很容易将 PPI 视为非必需品、额外的附加物、“拥有就好”而不予考虑。在这封公开信中，我们、研究人员和 PPI 贡献者认为，PPI 现在比以往任何时候都更重要。这场流行病正在影响社会上的每个人，正常的交往规则被抛弃。克服这种病毒的解决方案将来自许多不同的来源，医疗保健服务和我们的生活方式将出现许多变化。寻找解决方案的研究必须由所有受影响的人来制定：公众和患者必须是核心贡献者，并且必须听到他们的声音。
The research community is responding with speed to the COVID-19 pandemic, with rapid response mechanisms to fund research, shortened application turnaround times, and expedited research ethics processes. Public and patient involvement (PPI) is under pressure in this rapid response research, where it is easy for researchers and funders to dismiss PPI as non-essential, an added extra, a "nice to have". In this open letter, we, researchers and PPI contributors, argue that PPI is important, now more than ever. The pandemic is impacting everyone in society, with normal rules of engagement discarded. The solution to overcoming this virus will come from many different sources and many changes will emerge to healthcare delivery and to how we live our lives. It is essential that the research to find solutions is shaped by all who will be impacted: the public and the patient must be central contributors and their voice must be hear.