Continued parental attendance at a clinic for adult survivors of childhood cancer
Continued parental attendance at a clinic for adult survivors of childhood cancer
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DOI：
10.1097/00043426-200311000-00009
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发表时间：
2003-11-01
影响因子：
1.2
通讯作者：
Rosoff, PM
中科院分区：
文献类型：
--
作者：
Ressler, FB;Cash, J;Rosoff, PM
目的：儿童癌症的成年幸存者一直是一个服务不足和研究不足的人群。很少有诊所可以照顾他们，不像为儿童提供的许多诊所。作者建立了一个诊所，负责照顾所有25岁以前确诊的幸存者，确保有相当数量的成年人参与。作者观察到，许多成年患者在父母一方或双方的陪同下参加年度访问。该比率几乎是三倍高的父母相比，无论是在初级保健或专科内科clinic.Methods：作者调查了这一现象，要求父母的成年幸存者填写一份问卷，收集人口统计信息，以及父母陪同他们的成年子女的原因医生的预约。开放式的意见也solved.Results：大多数父母谁来与他们的成年幸存者的孩子没有陪同他们的其他孩子去看医生，并评论说，他们觉得有一个独特的债券所创造的癌症的经验，并没有减少随着年龄的增长，他们的孩子。父母的出席率是独立的诊断或人口指标。许多家长表示，他们继续关心他们的孩子的诊断，整体健康，和癌症复发的风险。讨论：儿童癌症的成年幸存者的父母可能怀有深深的保护性的感情，继续远远超出最初的治疗和停止治疗期间时，原发性癌症复发的威胁是一个现实的问题。这一点可以通过陪伴成年子女去看医生来体现，值得进一步研究。
Purpose: Adult survivors of childhood cancer have been an under-served and understudied population. Few clinics are available to take care of them, unlike the numerous ones that exist for children. The authors established a clinic that would take care of all survivors diagnosed before the age of 25 years, ensuring the participation of a significant number of adults. The authors observed that many adult patients came to their annual visits accompanied by one or both of their parents. The rate was almost three times as high compared with parents in either a primary care or subspecialty internal medicine clinic.Methods: The authors investigated this phenomenon by asking parents of adult survivors to fill out a questionnaire that collected demographic information as well as reasons for parents accompanying their adult children to doctors' appointments. Open-ended comments were also solicited.Results: Most parents who came with their adult survivor children did not accompany their other children to doctor visits and commented that they felt there was a unique bond created by the cancer experience that did not diminish with increasing age of their children. The rate of parental attendance was independent of diagnosis or demographic indicators. Many parents stated that they continued to be concerned about their child's diagnosis, overall health, and risk for cancer recurrence.Discussion: Parents of adult survivors of childhood cancer may harbor deep feelings of protectiveness that continue well beyond the initial treatment and off-treatment periods when the threat of primary cancer recurrence is a realistic concern. This can be manifested in them by accompanying their adult children to doctors' appointments and deserves further study.