Physical and mental health in mothers of children with Down syndrome
Physical and mental health in mothers of children with Down syndrome
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DOI：
10.1016/j.jpeds.2008.02.047
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发表时间：
2008-09-01
影响因子：
5.1
通讯作者：
Leonard, Helen
中科院分区：
文献类型：
--
作者：
Bourke, Jenny;Ricciardo, Bernadette;Leonard, Helen
目的探讨唐氏综合征患儿的特征与其母亲健康状况之间的关系。研究设计（<25岁）提供有关儿童健康、功能和行为的信息，结果250名母亲的躯体健康评分平均为50.2分（SD = 9.6）。与较低的平均身体健康评分相关的因素如下：儿童目前有心脏问题（P = 0.036），较高的体重指数（P = 0.006），以及发育行为检查表上较高（较差）的评分。孩子在学习新技能（P =.008）和家务（P =.014）方面不需要帮助/监督的母亲的身体健康评分更高。母亲的平均心理健康得分为45.2（SD = 10.6），显著低于50的常模（P <.0001）。相关的儿童因素包括目前的汽车问题（P = 0.079），肌肉/骨骼问题（P = 0.004），在过去的一年中疾病发作> 4次（P = 0.016），以及较高的DBC得分（P <0.0001）。结论母亲健康的最重要的预测因素是儿童的行为困难，日常功能和目前的健康状况。唐氏综合症儿童的母亲似乎经历了更差的心理健康，可能需要更多的支持和服务，以提高他们的孩子和自己的心理健康的行为管理技能。
Objective To identify the relationship between characteristics of the child with Down syndrome and the health of their mother.Study design Families with a child/young adult with Down syndrome (< 25 years) provided information related to the health of the child, functioning and behavior, and the health and well-being of the mother (n = 250).Results The mean physical health score of mothers was 50.2 (SD = 9.6). Factors associated with lower mean physical health scores were as follows: child having a current heart problem (P = .036), a higher body mass index (P = .006), and higher (poorer) scores on the Developmental Behavior Checklist. Better physical health scores were seen in mothers whose children required no help/supervision in learning new skills (P = .008) and domestic tasks (P = .014). The mean mental health score of mothers was 45.2 (SD = 10.6), significantly lower than the norm of 50 (P < .0001). Associated child factors included current car problems (P = .079), muscle/bone problems (P = .004), > 4 episodes of illness in past year (P = .016), and higher scores on the DBC (P < .0001).Conclusions The most important predictors of maternal health were children's behavioral difficulties, everyday functioning and current health status. Mothers of children with Down syndrome appear to experience poorer mental health and may require greater support and services to improve behavior management skills for their child and their own psychological well-being.