'Burden to others' as a public concern in advanced cancer: a comparative survey in seven European countries.

'Burden to others' as a public concern in advanced cancer: a comparative survey in seven European countries.
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“对他人的负担”是公众对晚期癌症的关注:在七个欧洲国家进行的比较调查。

DOI:
10.1186/1471-2407-13-105
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发表时间:
2013-03-08
期刊:
影响因子:
3.8
通讯作者:
PRISMA
PRISMA
中科院分区:
医学2区
文献类型:
--
作者:
Bausewein C;Calanzani N;Daveson BA;Simon ST;Ferreira PL;Higginson IJ;Bechinger-English D;Deliens L;Gysels M;Toscani F;Ceulemans L;Harding R;Gomes B;PRISMA

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随着人口老龄化和癌症发病率的上升,欧洲面临着巨大的公共卫生挑战。人们对欧洲各国公众在生命末期癌症护理方面的担忧知之甚少。我们的目的是比较公众对欧洲晚期癌症不同症状和问题的关注程度,并研究影响因素。对英格兰、弗兰德斯、德国、意大利、荷兰、葡萄牙和西班牙9,344名≥16岁的个体进行电话调查。参与者被问到9种症状和问题,想象一个不到一年的晚期癌症的情况。对这些问题进行了排名,并详细审查了三个最重要的问题。由于“给他人的负担”在国家内部和国家之间表现出最大的变化,我们使用GEE和Logistic回归确定了因素对这一问题的相对影响。总应答率为21%。疼痛是所有国家的首要问题,从34%的参与者(意大利)到49%(弗兰德斯)。伯顿在英格兰、德国、意大利、葡萄牙和西班牙排名第二。在弗兰德斯和荷兰,喘不过气来排在第二位。对负担的关注与年龄(70岁以上,OR 1.50; 95%CI 1.24-1.82)、独居(OR 0.82,95%CI 0.73-0.93)和更喜欢生活质量而不是生活数量(OR 1.43,95%CI 1.14-1.80)独立相关。当想象癌症生命的最后一年时,公众不仅担心医疗问题,而且担心成为负担。需要对公众进行姑息治疗和症状控制方面的教育。癌症护理应包括对社会问题的常规评估和管理,特别是对预后不良的老年患者。
Europe faces an enormous public health challenge with aging populations and rising cancer incidence. Little is known about what concerns the public across European countries regarding cancer care towards the end of life. We aimed to compare the level of public concern with different symptoms and problems in advanced cancer across Europe and examine factors influencing this. Telephone survey with 9,344 individuals aged ≥16 in England, Flanders, Germany, Italy, Netherlands, Portugal and Spain. Participants were asked about nine symptoms and problems, imagining a situation of advanced cancer with less than one year to live. These were ranked and the three top concerns examined in detail. As ‘burden to others’ showed most variation within and between countries, we determined the relative influence of factors on this concern using GEE and logistic regression. Overall response rate was 21%. Pain was the top concern in all countries, from 34% participants (Italy) to 49% (Flanders). Burden was second in England, Germany, Italy, Portugal, and Spain. Breathlessness was second in Flanders and the Netherlands. Concern with burden was independently associated with age (70+ years, OR 1.50; 95%CI 1.24-1.82), living alone (OR 0.82, 95%CI 0.73-0.93) and preferring quality rather than quantity of life (OR 1.43, 95%CI 1.14-1.80). When imagining a last year of life with cancer, the public is not only concerned about medical problems but also about being a burden. Public education about palliative care and symptom control is needed. Cancer care should include a routine assessment and management of social concerns, particularly for older patients with poor prognosis.
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发表时间: 2008-07-01
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