ETHICAL IMPLICATIONS OF LIFESTYLE MONITORING DATA IN AGEING RESEARCH
ETHICAL IMPLICATIONS OF LIFESTYLE MONITORING DATA IN AGEING RESEARCH
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DOI：
10.1080/1369118x.2010.530673
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发表时间：
2012-01-01
影响因子：
4.2
通讯作者：
Bell, David
中科院分区：
文献类型：
--
作者：
Bowes, Alison;Dawson, Alison;Bell, David
生活方式监测系统，智能主动系统，结合被动监测能力，并允许同时远程访问数据承诺潜在的好处，服务提供商，服务用户及其照顾者和家庭，以及那些从事老龄化研究。迄今为止的研究主要集中在技术问题上，通常忽略了对这些系统引起的道德问题的详细考虑。该论文基于文献综述，为研究人员确定了伦理问题和问题：知情同意;与认知受损的人合作;监测和监测的被动性;护理和使用的过程以及连接生活方式监测数据。报告最后强调，各方必须探讨和讨论多个利益攸关方群体的潜在利益与个人的实际成本之间的权衡。
Lifestyle monitoring systems, intelligent proactive systems incorporating passive monitoring capabilities and allowing contemporaneous remote access to data promise potential benefits to service providers, service users and their carers and families and those engaged in ageing research. Research to date has focused primarily on technical issues, generally at the expense of detailed consideration of the ethical issues raised by these systems. The paper, which is based on a literature review, identifies ethical issues and questions for researchers around: informed consent; working with people who are cognitively impaired; surveillance and the passivity of monitoring; processes of care and using and linking lifestyle monitoring data. It concludes by emphasizing the importance of all parties exploring and discussing the tradeoff between potential benefits to multiple stakeholder groups and actual costs to the individual.