Psycho-social impact of social distancing and isolation due to the COVID-19 containment measures on patients with physical disabilities

Psycho-social impact of social distancing and isolation due to the COVID-19 containment measures on patients with physical disabilities
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DOI:
10.23736/s1973-9087.20.06535-1
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发表时间:
2021-02-01
影响因子:
4.5
通讯作者:
Chisari, Carmelo
Chisari, Carmelo
中科院分区:
医学2区
文献类型:
--
作者:
Dalise, Stefania;Tramonti, Francesco;Chisari, Carmelo

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背景技术背景:当COVID-19疫情在全球蔓延时,意大利政府宣布封锁,并对医疗系统进行了大规模重组。大流行的心理和社会影响和自由的限制可能会对身体残疾的人产生不利影响,对他们来说,幸福在很大程度上取决于他们的社会环境。目的:我们的主要目的是描述残疾患者的心理健康,社会状况和疾病的认知大流行的整体影响,为这个特别脆弱的人群提供早期干预。为此,我们进行了一个特定的筛选协议,以检测任何心理distress.Design流行:横断面观察研究。设置:电话采访参加比萨大学医院神经康复科的患者和他们的照顾者。134名与神经系统疾病有关的身体残疾患者,由于政府的处置,他们的门诊预约被取消,方法:设计了一个特定的问卷(COVID 19-q)来测试患者的心理社会状态,包括一个针对照顾者的部分。此外,一个标准化的心理评估,使用临床结果在常规评价结果测量(CORE-OM),也performed.Results:结果显示,在我们的研究人群相比,一般人群的心理方面的不同影响。根据CORE-OM评估,患者未表现出任何临床相关的痛苦。然而,残疾程度较高的患者在社会功能、幸福感方面的结果在统计学上较低,危险行为增加。COVID-19-q的结果显示,我们的大多数患者报告在封锁期间他们的心理社会习惯和疾病感知没有变化或轻微变化。然而,家庭凝聚力的降低和医疗支持的缺乏是残疾人在疫情紧急情况下不得不面对的两个重要方面。结论:身体残疾人在面对社会孤立时的心理状态和良好的应对技能方面出人意料地表现出较轻的大流行影响,表现出弹性资源。然而,需要对医疗保健和社会关怀给予具体支持,特别是在严重残疾的管理方面。临床康复影响:这一意外和令人欣慰的结果可能揭示了一个令人担忧的情况,即残疾人的社会参与和生活质量:他们已经处于锁定状态吗?
BACKGROUND: While the COVID-19 pandemic was spreading worldwide, the Italian government stated lockdown, with a drastic reorganization of healthcare systems. The psychological and social effects of the pandemic and the restrictions of freedom could have had a detrimental impact on people with physical disabilities, for whom well-being depends strongly on their social environment.AIM: Our main aim was to describe the overall impact of the pandemic on mental health, social condition and illness perception among patients with disabilities, to provide early interventions for this particularly vulnerable population. For this purpose, we performed a specific screening protocol to detect the prevalence of any psychological distress.DESIGN: Cross-sectional observational study.SETTING: Telephonic interview administered to patients and their caregivers attending the Unit of Neurorehabilitation at the University Hospital of Pisa.POPULATION : 134 patients with physical disability related to neurological disorders, who had their outpatient appointment cancelled, because of the government dispositions, were enrolled.METHODS: A specific questionnaire (COVID19-q) was designed to test patients' psycho-social state, including a section addressed to the caregiver. Moreover, a standardized psychological evaluation, using the Clinical Outcomes in Routine Evaluation-Outcome Measure (CORE-OM), was also performed.RESULTS : Results show a different impact in our study population compared to the general population on psychological aspect. Patients did not manifest any clinically relevant distress, as assessed with CORE-OM. However, patients with higher disability degree reported a statistically lower outcome in the social function, in the well-being domains and an increase in risk behavior. Results from COVID19-q show that most of our patients reported none or mild change in their psycho-social habits and perception of illness during lockdown. However, reduction of family cohesion and lack of healthcare support are two important aspects that people with disability had to face with during the pandemic emergency.CONCLUSIONS: People with physical disabilities surprisingly shown milder effects of the pandemic on their psychological state and good coping skills in facing social isolation, manifesting resilience resources. However, the is a need to give concrete support to healthcare and social care, especially in the management of severe disability.CLINICAL REHABILITATION IMPACT : This unexpected and reassuring result may reveal a worrying scenario regarding-the social participation and quality of life of people with disabilities: were they already in lockdown?