Registers of the Swedish total population and their use in medical research
Registers of the Swedish total population and their use in medical research
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DOI：
10.1007/s10654-016-0117-y
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发表时间：
2016-03-01
影响因子：
13.6
通讯作者：
Ye, Weimin
中科院分区：
文献类型：
--
作者：
Ludvigsson, Jonas F.;Almqvist, Catarina;Ye, Weimin
瑞典全国人口登记制度的主要目的是获取数据，以（1）反映瑞典人口的组成、关系和身份，（2）可作为政府和其他管理当局作出正确决定和采取措施的依据。为此，瑞典建立了两个人口登记册：（1）人口登记册，由瑞典国家税务局维持;（2）总人口登记册，由政府机构瑞典统计局维持。登记册载有关于生活事件的数据，包括出生、死亡、改名、婚姻状况、家庭关系和瑞典境内的移徙以及出入其他国家。税务局每天向TPR发送最新信息。在本文中，我们描述了这两个人口登记册，并分析了它们的优点和缺点。几乎100%的出生和死亡、95%的移民和91%的移民都在30天内向人口登记处报告，而且随着时间的推移，这一比例会越来越高。贸易政策审查的过度覆盖主要是由于移民数据报告不足，据估计，覆盖率高达瑞典人口的0.5%。通过分配给所有在瑞典居住至少一年的居民的个人身份号码，TPR的数据可用于医学研究目的，包括家庭设计研究，因为每个人都可以与他或她的父母，兄弟姐妹和后代联系起来。TPR还允许识别一般人群对照、队列研究参与者以及计算随访时间。
The primary aim of the Swedish national population registration system is to obtain data that (1) reflect the composition, relationship and identities of the Swedish population and (2) can be used as the basis for correct decisions and measures by government and other regulatory authorities. For this purpose, Sweden has established two population registers: (1) The Population Register, maintained by the Swedish National Tax Agency ("Folkbokforingsregistret"); and (2) The Total Population Register (TPR) maintained by the government agency Statistics Sweden ("Registret over totalbefolkningen"). The registers contain data on life events including birth, death, name change, marital status, family relationships and migration within Sweden as well as to and from other countries. Updates are transmitted daily from the Tax Agency to the TPR. In this paper we describe the two population registers and analyse their strengths and weaknesses. Virtually 100 % of births and deaths, 95 % of immigrations and 91 % of emigrations are reported to the Population Registers within 30 days and with a higher proportion over time. The over-coverage of the TPR, which is primarily due to underreported emigration data, has been estimated at up to 0.5 % of the Swedish population. Through the personal identity number, assigned to all residents staying at least 1 year in Sweden, data from the TPR can be used for medical research purposes, including family design studies since each individual can be linked to his or her parents, siblings and offspring. The TPR also allows for identification of general population controls, participants in cohort studies, as well as calculation of follow-up time.