Measuring community participation of adults with psychiatric disabilities: reliability of two modes of data collection.

Measuring community participation of adults with psychiatric disabilities: reliability of two modes of data collection.
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衡量患有精神障碍的成年人的社区参与:两种数据收集模式的可靠性。

DOI:
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发表时间:
2014
影响因子:
2.7
通讯作者:
Petra Kottsieper
Petra Kottsieper
中科院分区:
医学3区
文献类型:
--
作者:
M. Salzer;Eugene Brusilovskiy;Janet A. Prvu;Petra Kottsieper

文献摘要

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目的/目标 《美国残疾人法》启动了一系列政策和行动,以促进社区融合和参与,包括精神残疾者。衡量这一群体的参与程度尚处于起步阶段。本研究探讨了两种管理模式的测量,评估参与四个社会生活领域的参与程度,参与被视为充分和重要的重测信度。 研究方法/设计 119名被诊断为精神分裂症、双相情感障碍或重度抑郁症的个体被随机分配到一个访谈者或自我管理的方法来完成测量,并在48-72小时内以相同的格式再次填写测量。 结果 在两个时间点之间,个体参与项目和量表水平的相关性几乎都在r = .6-.9范围内。关于它们参与的重要性和充分性的一致意见也一直很高。参与每个领域的重要性从36%到95%不等,在这些人中,18%到71%的人表示他们没有像期望的那样参与。 结论/影响 精神残疾者的社区参与可以使用2种管理方法可靠地测量,作为对这一人群的康复研究和评估研究的结果。这些人在不同程度上参与了社区中重要的广泛参与领域,但大多数都没有达到他们想要的程度。需要更多的干预努力,以提高社区参与的充分性。
PURPOSE/OBJECTIVE The Americans with Disabilities Act set in motion a series of policies and actions to promote community integration and participation, including for those individuals with psychiatric disabilities. Measuring participation in this population is in its infancy. This study examines the test-retest reliability of two modes of administration of a measure that assesses participation in four social life domains and the extent to which participation is viewed as sufficient and important. RESEARCH METHOD/DESIGN One hundred and 19 individuals with a diagnosis of schizophrenia, bipolar disorder, or major depression were randomly assigned to either an interviewer- or self-administered method of completing the measure, and filled out the measure again in the same format within 48-72 hr. RESULTS Correlations at the individual participation item and scale levels between the two time points were nearly all in the r = .6-.9 range. Agreement on the importance and sufficiency of their participation was also consistently high. The importance of participation in each area ranged from 36% to 95%, and among these individuals, between 18% and 71% indicated they were not participating as much as desired. CONCLUSIONS/IMPLICATIONS Community participation of individuals with psychiatric disabilities can be reliably measured using 2 methods of administration as an outcome in rehabilitation research and evaluation studies with this population. These individuals are engaged to varying degrees in a wide-range of participation areas in the community that are important, but most not to the degree that they desire. More intervention efforts are needed to increase the sufficiency of community participation.