Public attitudes about genetic testing for Alzheimer's disease
Public attitudes about genetic testing for Alzheimer's disease
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DOI：
10.1377/hlthaff.20.5.252
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发表时间：
2001-09-01
期刊：
影响因子：
9.7
通讯作者：
Kosik, KS
中科院分区：
文献类型：
--
作者：
Neumann, PJ;Hammitt, JK;Kosik, KS
在一项普通人群调查（N = 314）中，79%的受访者表示，他们会进行一项假设的基因测试，以预测他们最终是否会患上阿尔茨海默病。在“部分预测”测试中，这一比例降至45%（该测试有十分之一的几率出错）。各年龄组接受检测的倾向相似。受访者愿意为这项完全预测性的测试支付324美元。受访者表示，如果他们的检测呈阳性，他们会签署预先指示（84%），让他们的财务状况井然有序（74%），并购买长期护理保险（69%）。只有三分之一的受访者表示担心保密问题。研究结果表明，出于个人和经济原因，人们重视基因检测，但同时也强调，有必要就检测信息的准确性和含义向潜在的接受者进行仔细咨询。
In a general population survey (N = 314), 79 percent of respondents stated that they would take a hypothetical genetic test to predict whether they will eventually develop Alzheimer's disease. The proportion fell to 45 percent for a "partially predictive" test (which had a one in ten chance of being incorrect). Inclination to obtain testing was similar across age groups. Respondents were willing to pay $324 for the completely predictive test. Respondents stated that if they tested positive, they would sign advance directives (84 percent), get their finances in order (74 percent), and purchase long-term care insurance (69 percent). Only a third of respondents expressed concern about confidentiality. The results suggest that people value genetic testing for personal and financial reasons, but they also underscore the need to counsel potential recipients carefully about the accuracy and implications of test information.