Quality of life for caregivers of people with Alzheimer's disease
Quality of life for caregivers of people with Alzheimer's disease
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DOI：
10.1111/j.1365-2648.2007.04494.x
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发表时间：
2008-01-01
影响因子：
3.8
通讯作者：
Cohen, Marlene Zichi
中科院分区：
文献类型：
--
作者：
Vellone, Ercole;Piras, Giovanni;Cohen, Marlene Zichi
目的。本文是一项研究报告，旨在描述阿尔茨海默病患者护理人员的生活质量的意义，并确定影响其生活质量的因素。背景。非正式护理人员的负担及其生活质量的变化可能导致患者被安置在疗养院。研究发现，导致护理人员生活质量恶化的因素包括财务紧张、家庭功能不佳、患者行为困难、经济负担以及护理人员花在照顾患有阿尔茨海默病的家庭成员上的时间。方法。采用解释学现象学设计对 32 名阿尔茨海默病患者的非正式护理人员进行了研究。数据是通过 2004 年 11 月至 2005 年 6 月期间的访谈收集的。调查结果。护理人员将良好的生活质量与平静、安宁、心理健康、自由、总体幸福感、健康状况和良好的财务状况联系在一起。护理人员表示，改善生活质量的因素包括患者的良好健康状况、独立于患者以及在护理方面提供更多帮助。使他们的生活质量恶化的因素是对患者疾病的未来和进展的担忧以及压力。结论。我们的研究结果可能有助于医疗保健专业人员更深入地了解护理人员对生活质量的意义，从而有助于设计维持或改善生活质量的策略。尚未开展干预研究的国家的护理人员需要进行干预研究。研究人员还应该调查不同类型的照顾者（配偶、成年子女和朋友）是否有不同的需求或问题。
Aim. This paper is a report of a study to describe the meaning of quality of life for caregivers of patients with Alzheimer's disease and to identify factors that affect their quality of life.Background. The burden for informal caregivers and change in their quality of life can lead to patients being placed in nursing homes. Factors found to worsen caregivers' quality of life include strained finances, poor family functioning, difficult patient behaviour, financial burdens and the amount of time caregivers spend caring for family members with Alzheimer's disease.Method. A hermeneutic phenomenological design was used to study 32 informal caregivers of patients with Alzheimer's disease. Data were collected using interviews between November 2004 and June 2005.Findings. Caregivers associated good quality of life with serenity, tranquility, psychological well-being, freedom, general well-being, good health and good financial status. Factors that caregivers said improved their quality of life were good health of the patient, independence from the patient, and more help in caregiving. Factors that worsened their quality of life were worries about the future and progression of the patient's illness and stress.Conclusion. Our findings may help healthcare professionals have a deeper understanding of the meaning caregivers give to quality of life and thereby aid in the design of strategies to maintain or improve quality of life. Intervention research is needed for caregivers in countries where this has not yet been performed. Researchers should also investigate whether different types of caregivers (spouse, adult child and friend) have different needs or problems.