Evolving psychosocial, emotional, functional, and support needs of women with advanced breast cancer: Results from the Count Us, Know Us, Join Us and Here & Now surveys
Evolving psychosocial, emotional, functional, and support needs of women with advanced breast cancer: Results from the Count Us, Know Us, Join Us and Here & Now surveys
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DOI：
10.1016/j.breast.2016.04.004
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发表时间：
2016-08-01
期刊：
影响因子：
3.9
通讯作者：
Fenech, Doris
中科院分区：
文献类型：
--
作者：
Cardoso, Fatima;Harbeck, Nadia;Fenech, Doris
尽管医学进步略微改善了晚期乳腺癌妇女的生存，但她们的心理社会、情感和功能需求仍未得到满足。我们进行了两项调查，分别是Count Us、Know Us、Join Us （Count Us）和Here & Now (H&N)，旨在了解晚期乳腺癌女性面临的独特挑战，并找出解决这些问题的方法。共有1577名晚期乳腺癌女性（Count Us, N - 1273; H&N, N - 304）参与了这两项调查，揭示了一些以前未报道的挑战。近一半的女性感到孤立和担忧，略多于一半的女性因就业变化而经历了收入下降；41%的女性认为家人和朋友的支持随着时间的推移而减少，许多患者认为关于晚期乳腺癌的信息不充分，而且很难找到。迫切需要关心和支持晚期乳腺癌妇女的人们齐心协力解决这些问题。(C) 2016 Elsevier Ltd.版权所有。
Although medical advances have marginally improved survival of women with advanced breast cancer, their psychosocial, emotional, and functional needs remain unmet. Two surveys, Count Us, Know Us, Join Us (Count Us) and Here & Now (H&N), were conducted to understand the unique challenges faced by women with advanced breast cancer and to identify ways of addressing these issues. A total of 1577 women with advanced breast cancer (Count Us, N - 1273; H&N, N - 304) participated in the two surveys, which revealed several previously unreported challenges. Nearly half the women felt isolated and worried, and slightly more than half experienced declines in income because of change in employment; 41% of women felt that support from family and friends decreased over time, and many patients believed information about advanced breast cancer was inadequate and difficult to find. Concerted efforts by people who care for and support women with advanced breast cancer are urgently needed to address these issues. (C) 2016 Elsevier Ltd. All rights reserved.