The phenomena of participation and non-participation in health care--experiences of patients attending a nurse-led clinic for chronic heart failure.
The phenomena of participation and non-participation in health care--experiences of patients attending a nurse-led clinic for chronic heart failure.
复制标题
DOI：
10.1016/j.ejcnurse.2004.05.001
复制
发表时间：
2004-09-01
影响因子：
2.9
通讯作者：
Ekman, Inger
中科院分区：
文献类型：
--
作者：
Eldh, Ann Catrine;Ehnfors, Margareta;Ekman, Inger
背景：许多西方国家的医疗保健法案强调患者参与，但缺乏对该概念的共同定义。了解参加护士主导的专科诊所的慢性心力衰竭 (CHF) 患者的经历（一种被认为是该群体受益者的护理形式）可能会促进对参与的更好理解。目的：调查 CHF 患者经历的参与和不参与的含义。方法：在受利科启发的现象学解释学传统中进行叙事访谈，其中解释是在解释学圈中进行的，解释和理解经历过的经历现象。调查结果：参与体验为“自信”、“理解”和“寻求并保持控制感”。不参与的感受包括“不理解”、“无法控制”、“缺乏关系”和“不负责任”。研究结果表明，参与和不参与的经历会随着时间以及疾病和治疗的阶段而变化。结论：该研究提出了对参与概念的扩展观点。患者参与医疗保健的经历可能有所不同，因此应该成为护士主导的专科诊所中护士和 CHF 患者之间对话的一个问题。
BACKGROUND: Patient participation is stressed in the health care acts of many western countries yet a common definition of the concept is lacking. The understanding of experiences of patients with chronic heart failure (CHF) who attend nurse-led specialist clinics, a form of care suggested as beneficiary to this group, may promote a better understanding of participation.AIM: To investigate the meanings of participation and non-participation as experienced by patients living with CHF.METHODS: Narrative interviews analysed in the phenomenological hermeneutic tradition inspired by Ricoeur where the interpretation is made in the hermeneutic circle, explaining and understanding the experienced phenomena.FINDINGS: Participation was experienced as to "be confident", "comprehend" and "seek and maintain a sense of control". Non-participation was experienced as to "not understand", "not be in control", "lack a relationship" and "not be accountable". The findings indicate that the experiences of participation and non-participation can change over time and phases of the disease and treatment.CONCLUSION: The study suggests an extended view on the concept of participation. Patients' experiences of participation in health care can vary and should therefore be an issue for dialogue between nurses and patients with CHF in nurse-led specialist clinics.