Case Study: An Ethics Case Study of HIV Prevention Research on Facebook: The Just/Us Study
Case Study: An Ethics Case Study of HIV Prevention Research on Facebook: The Just/Us Study
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DOI：
10.1093/jpepsy/jsq126
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发表时间：
2011-11-01
影响因子：
3.6
通讯作者：
Santelli, John S.
中科院分区：
文献类型：
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作者：
Bull, Sheana S.;Breslin, Lindsey T.;Santelli, John S.
目标 考虑与青少年在线社交网站研究相关的问题。方法 描述一项随机对照试验中 1,588 名参与者的数据收集过程，该试验测试 Facebook 上提供的艾滋病毒预防教育的效果。使用受访者驱动的抽样，鼓励工作人员招募的参与者招募最多三名朋友来参加这项研究。结果 研究人员应该 (a) 考虑在线社交网站是否是实施研究的适当场所； (b) 在整个研究过程中提供在多个地点多次审查知情同意文件的机会； (c) 在社交网站之外收集数据并将其存储在安全防火墙后面，以确保社交网站上的任何人都无法访问这些数据。结论 在线社交网络越来越受欢迎。在社交媒体网站上进行研究需要刻意关注同意、保密和安全。
Objective To consider issues related to research with youth on social networking sites online. Methods Description of the data collection process from 1,588 participants in a randomized controlled trial testing the efficacy of HIV prevention education delivered on Facebook. Using respondent-driven sampling, staff-recruited participants are encouraged to recruit up to three friends to enroll in the study. Results Researchers should (a) consider whether an online social networking site is an appropriate place to implement a research study; (b) offer opportunities to review informed consent documents at multiple times and in multiple locations throughout the study; and (c) collect data outside the social networking site and store it behind secure firewalls to ensure it will not be accessible to any person on the social networking site. Conclusions Online social networks are growing in popularity. Conducting research on social media sites requires deliberate attention to consent, confidentiality, and security.