A Qualitative Investigation of Fathers' Experiences of Looking After a Child with a Life-limiting Illness, in Process and in Retrospect
A Qualitative Investigation of Fathers' Experiences of Looking After a Child with a Life-limiting Illness, in Process and in Retrospect
复制标题
对父亲照顾患有生命有限疾病的孩子的经历的定性调查，过程中和回顾
DOI：
10.1177/1359104507080981
复制
发表时间：
2007
影响因子：
1.8
通讯作者：
H. Raval
中科院分区：
文献类型：
--
作者：
Jane Ware;H. Raval
限制儿童生命的疾病是那些没有合理希望治愈的疾病，儿童将死于这些疾病。直到最近，这些疾病才被认为是一个独立的类别，因此相对较少的研究专门关注这组儿童及其家庭。本研究利用质性方法调查父亲的经验，一组谁往往是在儿童疾病研究的代表性不足。研究的目的是了解父亲的经验，有一个孩子的生命限制性疾病，它对他们的影响，以及他们的服务提供的看法。从八个访谈的数据进行了分析，使用解释现象学分析。出现了四个主要主题，突出了父亲们的感觉，他们的世界被颠倒了，他们如何在知道他们的孩子会死的情况下生活，男人如何看待自己与女人的不同，以及父亲们希望为改变和改善其他父亲如何科普一个有生命限制的疾病的孩子做出贡献。讨论的结果特别涉及性别问题。临床实践和服务提供的各种影响被认为是。并对今后的研究提出了建议。
Child life-limiting illnesses are those from which there is no reasonable hope of cure and from which children will die. Only recently have these illnesses been recognized as a discrete category and thus relatively little research has focused specifically upon this group of children and their families. This study utilized qualitative methods to investigate the experience of fathers, a group who are often under-represented in child illness research. The research aim was to gain an understanding of fathers' experiences of having a child with a life-limiting illness, its impact upon them, and their perceptions of service provision. The data from eight interviews was analysed using Interpretative Phenomenological Analysis. Four main themes emerged highlighting the fathers' feeling that their world had been turned upside down, how they lived with the knowledge their child would die, how men perceive themselves as different from women, and the fathers' wish to contribute to changing and improving how other fathers might cope with a child with a life-limiting illness. The results are discussed particularly in relation to gender issues. Various implications for clinical practice and service provision are considered. Suggestions are also made for future research.
词图，心理学定性研究
DOI：
--
发表时间：
2004
期刊：
影响因子：
--
作者：
Muto;T.;Yamada;Y.;Minami;H.;Asao;T.;Sato;T.
通讯作者：
T.