Person-Centered Web Support to Women with Type 1 Diabetes in Pregnancy and Early Motherhood-The Development Process
Person-Centered Web Support to Women with Type 1 Diabetes in Pregnancy and Early Motherhood-The Development Process
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DOI：
10.1089/dia.2012.0217
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发表时间：
2013-01-01
影响因子：
5.4
通讯作者：
Sparud-Lundin, Carina
中科院分区：
文献类型：
--
作者：
Berg, Marie;Adolfsson, Annsofie;Sparud-Lundin, Carina
背景：对于1型糖尿病患者来说，怀孕和早期分娩是非常苛刻的时期，因此需要最佳支持。本文介绍了发展过程中的人为中心的网络支持1型糖尿病妇女在怀孕期间通过早期母亲。以人为中心的重要方面是更广泛的医学范围，将患者视为一个人，共同决策以完成治疗联盟，以及document.Materials和Methods的作用：在开发过程中使用参与式设计来捕获目标群体的知识，经验和需求，并使用基于Web的支持的系统过程图来描述该过程。网络支持的内容和布局是由项目经理、咨询和科学参考小组、技术制作人和目标群体的代表合作开发的。根据需求评估和证据综合，确定了基于网络的辅助支持的三个主要组成部分：（1）与1型糖尿病有关的怀孕、分娩和早育的具体信息;（2）自我护理日记，包括记录和评估血糖水平、胰岛素剂量、食物摄入、体育活动和总体健康的设备;结论：从以人为本的护理理念出发，采用参与式设计和过程图，为1型糖尿病患者提供以人为本的自我护理和自我学习的网络支持。开发的网络支持产品将在随机对照试验中进行评估，并根据这一结果进一步开发。
Background: Pregnancy and early motherhood are extraordinarily demanding periods for women with type 1 diabetes, who therefore need optimal support. This article describes the process of developing person-centered Web-based support for women with type 1 diabetes during the period of pregnancy through early motherhood. Important aspects of person-centeredness are a broader scope of medicine, viewing the patient as a person, shared decision-making to accomplish a therapeutic alliance, and the role of documentation.Materials and Methods: A participatory design was used in the development process to capture the target group's knowledge, experiences, and needs, and a systematic process map for Web-based support was used to describe the process.Results: Content and layout in the Web support were developed collaboratively by project managers, advisory and scientific reference groups, technical producers, and representatives for the target group. Based on needs assessment and evidence synthesis, three main components of complementary Web-based support were identified: (1) specific information about pregnancy, childbirth, and early motherhood in relation to type 1 diabetes; (2) a self-care diary, including a device for documenting and evaluating blood glucose levels, insulin doses, food intake, physical activities, and overall well-being; and (3) a forum for communication between women with type 1 diabetes in the childbearing period.Conclusions: Using a perspective of person-centered care, a participatory design and the process map were fruitful for developing person-centered Web support for self-care and self-learning. The developed Web support product will be evaluated in a randomized controlled trial and further developed based on this result.