Why we need community engagement in medical research.
Why we need community engagement in medical research.
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DOI：
10.1097/jim.0000000000000097
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发表时间：
2014-08
期刊：
影响因子：
--
通讯作者：
Merritt MW
中科院分区：
文献类型：
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作者：
Holzer JK;Ellis L;Merritt MW
医学研究企业依赖于公众对其社会价值的认可。鉴于有证据表明公众不信任，特别是在少数群体中，研究参与者的入学率和多样性不足，以及对研究结果的吸收不足，医学研究似乎没有得到足够的公众关注。社区参与医学研究，特别关注少数群体社区，可以通过以实际方式表现出对社区的尊重，帮助弥补这一不足。我们提供了三个案例，说明社区参与研究的具体方法如何建立研究人员和社区之间的信任，鼓励代表性不足的群体参与，并提高研究成果的相关性和吸收。这里讨论的具体方法的一个共同特点是，它们使研究人员能够通过承认社区的价值观和利益来表现出尊重。尊重社区具有内在的道德重要性。特别是通过社区参与来展示尊重的两个潜在结果是：（1）产生与社区更相关的研究;（2）减轻研究人员与社区关系中的不对称。我们总结了实用的资源，可供研究人员谁寻求将社区参与他们的研究。
The medical research enterprise depends on public recognition of its societal value. In light of evidence indicating public mistrust, especially among minorities, inadequate enrollment and diversity of research participants, and poor uptake of findings, medical research appears to fall short of sufficient public regard. Community engagement in medical research, with special attention to minority communities, may help to remedy this shortfall by demonstrating respect for communities in practical ways. We provide three case examples that illustrate how specific approaches to community-engaged research can build trust between researchers and communities, encourage participation among under-represented groups, and enhance the relevance and uptake of research findings. A common attribute of the specific approaches discussed here is that they enable researchers to demonstrate respect by recognizing community values and interests. The demonstration of respect for communities has intrinsic ethical importance. Two potential outgrowths of demonstrating respect specifically through community engagement are (1) the production of research that is more relevant to the community and (2) the mitigation of asymmetry in the researcher-community relationship. We summarize practical resources available to researchers who seek to incorporate community engagement in their research.