Description and Evaluation of a Home-Based, Parent-Administered Program for Teaching Enhanced Natural Gestures to Individuals With Angelman Syndrome

Description and Evaluation of a Home-Based, Parent-Administered Program for Teaching Enhanced Natural Gestures to Individuals With Angelman Syndrome
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DOI:
10.1044/2015_ajslp-15-0017
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发表时间:
2016-02-01
影响因子:
2.6
通讯作者:
Calculator, Stephen N.
Calculator, Stephen N.
中科院分区:
医学2区
文献类型:
--
作者:
Calculator, Stephen N.

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目的:这篇文章描述并展示了一种基于家庭的、自我管理的增强自然手势(ENG)项目的结果,该项目适用于Angelman综合征患者。方法:18名天使综合症患者(11名男孩和7名女孩)的父母,在与他们的语言病理学家协商后,参加了一个准实验“B”设计,在这个设计中,他们自我管理一个教学计划,教他们的孩子在家里和/或在社区中使用增强的自然手势。家长在与孩子的日常互动中,融入了时间延迟式的Mand-Model和模塑式的教学方法。家长通过目标实现量表和完成英语可接受性评分表来报告项目的结果。结果:获得英语的儿童的总体成绩一般达到或超过了项目(和家长)的期望。大多数家长报告说,与孩子一起自我管理英语课程没有什么困难,并在多个方面积极地看待该课程。结论:英语可能与其他形式的辅助和替代交流相结合,代表了许多天使综合征患者的一种可行的交流方法。需要进一步的研究来探索英语在其他有严重残疾和复杂沟通挑战的人群中的可行性。
Purpose: This article describes and presents outcomes of a home-based, self-administered version of the Enhanced Natural Gestures (ENG) program for individuals with Angelman syndrome.Method: Parents of 18 individuals (11 boys and 7 girls) with Angelman syndrome, in consultation with their speech-language pathologists, participated in a quasi-experimental "B" design in which they self-administered an instructional program to teach their children to use enhanced natural gestures at home and/or in the community. Parents integrated 2 teaching methods, Mand-Model with time delay and Molding-Shaping, into their everyday interactions with their children. Parents reported outcomes of the program through goal attainment scaling and completion of the ENG Acceptability Rating Form.Results: Children's overall achievements acquiring ENGs generally met or exceeded program (and parent) expectations. Most parents reported little difficulty self-administering the ENG program with their children and regarded the program positively across multiple dimensions.Conclusions: ENGs may, in conjunction with other forms of augmentative and alternative communication, represent a viable method of communication for many individuals with Angelman syndrome. Further research is warranted to explore the feasibility of ENGs with other populations of individuals with severe disabilities and complex communication challenges.