Engaging with Community Advisory Boards (CABs) in Lusaka Zambia: perspectives from the research team and CAB members

Engaging with Community Advisory Boards (CABs) in Lusaka Zambia: perspectives from the research team and CAB members
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DOI:
10.1186/s12910-015-0031-y
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发表时间:
2015-06-03
期刊:
影响因子:
2.7
通讯作者:
Moodley, Keymanthri
Moodley, Keymanthri
中科院分区:
人文科学2区
文献类型:
--
作者:
Mwinga, Alwyn;Moodley, Keymanthri

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背景:使用社区咨询委员会(CAB)是确保社区参与基于社区的研究的一种方法。为了确定构成赞比亚CAB的过程,本文借鉴了在卢萨卡使用CAB的研究小组的研究团队成员和CAB成员的观点。确定了影响CAB功能的启用和限制因素。方法:回顾2008 - 2012年赞比亚大学生物伦理研究委员会(UBNZABREC)批准的所有研究,以确定可能包含CAB的研究。确定了八个研究小组,其中包括CAB。对于每一项研究,我们都同意与一名研究小组成员进行非正式访谈,并获得一名CAB成员的联系方式。2013年8月12日至30日,共对8名研究小组成员和6名CAB成员进行了14次访谈。结果:从社区中确定潜在的咨询委员会成员,并让他们参与制定咨询委员会的职权范围,被认为对咨询委员会的成功做出了贡献。由于社区对社区成员的信任,CABs在影响社区参与研究方面处于更有利的地位。委员会成员的培训被认为是加强委员会运作的一个因素。CAB成员缺乏承诺和低文化水平对CAB的作用构成威胁。虽然没有提供津贴形式的补偿,但向行政协调会成员提供出席会议的交通费报销。结论:从社区中选择CAB成员有助于社区对CAB的信心,增强其作为研究小组与社区之间有效联系的能力。这对研究的进行及提高社会对研究的认识和接受度有积极的作用。然而,由于研究小组以运输报销和其他形式的支持提供支持,建立特定研究的CAB有可能损害CAB的独立性。应考虑建立全社区社区咨询委员会,以便在一系列研究中发挥作用,以增加独立客观的决策。
Background: The use of a Community Advisory Board (CAB) is one method of ensuring community engagement in community based research. To identify the process used to constitute CABs in Zambia, this paper draws on the perspectives of both research team members and CAB members from research groups who used CABs in Lusaka. Enabling and restricting factors impacting on the functioning of the CAB were identified.Methods: All studies approved by the University of Zambia Bioethics Research Committee (UBNZABREC) from 2008 - 2012 were reviewed to identify those studies that were likely to include a CAB. Eight teams with studies that included a CAB were identified. For each of these studies, consent was obtained to conduct an informal interview with a research team member and to obtain contact details for one CAB member. In total 14 interviews were conducted with 8 research team members and 6 CAB members from 12-30 August 2013.Results: Identification of potential CAB members from the community and their participation in developing the terms of reference for CABs was perceived to have contributed to the success of the CAB. Due to the trust that the community had in members of their community the CABs were then in a stronger position to influence community participation in the research. Training of CAB members was identified as a factor that enhanced the functioning of a CAB. Lack of commitment and low literacy levels of CAB members posed a threat to the role of the CAB. Although compensation in the form of a stipend was not provided, CAB members were provided with transport reimbursements for attending meetings.Conclusions: Selection of CAB members from within the community contributed to community confidence in the CAB, enhancing its ability to act as an effective link between study team and community. This contributed positively to the conduct of the study and enhanced community awareness and acceptance of the research. However, establishment of study specific CABs has the potential to compromise CAB independence due to support provided by the research team in the form of transport reimbursements and other forms of support. Consideration should be given to establishing community wide Community Advisory Boards that could function across a range of studies to increase independent objective decision-making.