Mixed-methods content and sentiment analysis of adolescents' voice diaries describing daily experiences with asthma and self-management decision-making.
Mixed-methods content and sentiment analysis of adolescents' voice diaries describing daily experiences with asthma and self-management decision-making.
复制标题
DOI：
10.1111/cea.13250
复制
发表时间：
2019-03
期刊：
影响因子：
--
通讯作者：
Arcoleo K
中科院分区：
文献类型：
--
作者：
Mammen JR;Java JJ;Rhee H;Butz AM;Halterman JS;Arcoleo K
在青少年人群中，准确的症状评估仍然具有挑战性。对常见的症状/反应模式知之甚少，自我报告的纸质日记传统上遵从率较低。因此，我们使用同步数字语音日记来记录日常哮喘经历。(1)定性地探索常见症状模式和自我管理反应；(2)定量地探索症状严重程度与情绪评分(对事件的情绪反应的标志)之间的关系。14名患有受控(50%)和未受控哮喘的少数民族和非少数民族青少年(年龄13-17岁)使用数字记录仪在14天内每天报告一次他们的哮喘。根据症状频率、严重程度、类型和自我管理反应对日记条目进行编码，同时使用情绪分析来评估日记条目的情绪效价，并探索症状水平增加是否与更多的负面情绪相关。语音日记中记录的症状频率和严重程度远远高于基线时的青少年，这与哮喘控制的临床评估不一致。在175个条目中，青少年有69.1%的天数(121/175)出现症状，其中三分之一出现严重症状。非典型症状(咳嗽、清嗓子)的报告频率是传统症状(喘息、胸闷)的两倍，而且通常不被认为是哮喘，而是被归因于“生病”(症状天数的25.6%)。青少年经常将症状降至最低，使用抢救和控制药物的情况不一致，并诉诸替代策略来管理症状。情绪与被评估的控制力没有显著相关(β=0.14，p=0.28)，但对于有严重症状的青少年，情绪得分比没有症状的青少年下降了0.31(P=0.006)。青少年可能会将症状降至最低，并具有比他们自己或提供者所认识到的更高的症状频率和严重程度。可能需要对咳嗽、清喉和呼吸道疾病等特定症状进行筛查，以确定那些经历哮喘负担的人。
Accurate symptom assessment remains challenging in teen populations. Little is known of usual symptom/response patterns, and self-reported paper diaries have traditionally low compliance rates. Therefore, we used concurrent digital voice-diaries to capture daily asthma experiences. (1) To qualitatively explore usual symptom patterns and self-management responses; and (2) to quantitatively explore relationships between symptom severity and sentiment scores (a marker of emotional response to events). Fourteen minority and non-minority teenagers (age 13–17) with controlled (50%) and uncontrolled asthma used digital recorders to report about their asthma once daily over 14 days. Dairy entries were coded for symptom frequency, severity, type, and self-management responses, while sentiment analysis was used to evaluate the emotional valence of diary entries and to explore whether increased symptom levels correlated with greater negative sentiment. Symptom frequency and severity recorded in voice-diaries was much higher than teens indicated at baseline, and was discordant with clinical assessments of asthma control. Of 175 entries, teens had symptoms 69.1% of days (121/175) and severe symptoms on one-third of these. Atypical symptoms (coughing, throat-clearing) were reported twice as often as traditional symptoms (wheezing, chest tightness), and often not recognized as asthma, but rather attributed to being “sick” (25.6% of symptom days). Teens frequently minimized symptoms, used rescue and controller medication inconsistently, and resorted to alternative strategies to manage symptoms. Sentiment was not significantly correlated with assessed control (β=0.14, p=0.28), but for teens reporting severe symptoms, sentiment scores decreased by 0.31 relative to teens without symptoms (P=0.006). Teens may minimize symptoms and have greater symptom frequency and severity than is recognized by themselves or providers. Screening for specific symptoms including coughing, throat-clearing, and respiratory illness may be needed to identify those experiencing burden from asthma.
登录
查看更多内容
影响因子：
3.2
作者：
Hsieh, HF;Shannon, SE
通讯作者：
Shannon, SE
影响因子：
3.1
作者：
Bruzzese, Jean-Marie;Reigada, Laura C.;Lamm, Alexandra;Wang, Jing;Li, Meng;Zandieh, Stephanie O.;Klein, Rachel G.
通讯作者：
Klein, Rachel G.
影响因子：
1.9
作者：
Butz, Arlene;Kub, Joan;Bollinger, Mary Elizabeth
通讯作者：
Bollinger, Mary Elizabeth
影响因子：
6.1
作者：
Holley, S.;Walker, D.;Roberts, G.
通讯作者：
Roberts, G.
影响因子：
7.4
作者：
Mulvaney SA;Ho YX;Cala CM;Chen Q;Nian H;Patterson BL;Johnson KB
通讯作者：
Johnson KB