Parent Advocacy for Lives That Matter
Parent Advocacy for Lives That Matter
复制标题
家长倡导重要的生命
DOI：
10.1177/15407969211036442
复制
发表时间：
2021
影响因子：
2.5
通讯作者：
Lydia Ocasio
中科院分区：
文献类型：
--
作者：
B. Harry;Lydia Ocasio
本文将“黑人的生命很重要”的概念与照顾者为倡导残疾儿童的生命价值所做的努力进行了比较。作者确定了三个关键概念来支持他们的论点：第一，系统性偏见的概念，建立在不同残疾的等级评价和这种偏见在评价父母的声音中的作用;第二，被污名化的身份标记交叉以加强偏见的方式;第三，作者提出了一个广义的父母辩护的含义，其中服务提供者寻求共同倡导者，而不是作为专业顾问的工作。作者回顾了关于这些主题的相关文献，并借鉴了自己作为残疾儿童父母的有色人种女性的经验。他们在COVID-19大流行和Black Lives Matter运动融合的背景下对这些主题进行了探索，并呼吁认识论假设和交叉性来解决参与者对种族主义的观点是否应被视为“真理”的问题。
This article draws parallels between the concept of “Black lives matter” and the efforts of caregivers to advocate for the value of the lives of their children who have disabilities. The authors identify three key concepts that undergird their argument: first, the concept of systemic bias as built in to the hierarchical valuing of different disabilities and the role of this bias in the valuing of parents’ voices; second, the ways in which stigmatized identity markers intersect to intensify bias; and third, the authors propose a broad interpretation of the meaning of parent advocacy in which service providers seek to work as co-advocates rather than as professional advisors. The authors review relevant literature on these themes and also draw on their own experiences as women of color who are parents of children with disabilities. They present their exploration of these topics against the backdrop of the convergence of the COVID-19 pandemic and the Black Lives Matter movement, and call on epistemological assumptions and intersectionality to address the question of whether participants’ perspectives on racism should be considered as “truth.”