Planning for Your Advance Care Needs (PLAN): A Communication Intervention to Improve Advance Care Planning among Latino Patients with Advanced Cancer.
Planning for Your Advance Care Needs (PLAN): A Communication Intervention to Improve Advance Care Planning among Latino Patients with Advanced Cancer.
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这项研究的目标是开发一种干预措施，旨在帮助提高拉丁裔晚期癌症患者对预先护理计划的参与度。具体来说，这项研究旨在纳入干预措施的关键用户（患有晚期癌症的拉丁裔患者、他们的护理人员以及与该人群合作的临床医生和研究人员）的反馈，以确保该干预措施得到优化以满足该患者群体的需求。这项研究的结果用于修改和改进这一干预措施，并在未来的研究中测试其可接受性、可用性以及提高拉丁裔患者参与预先护理计划的能力。未来的研究需要证明干预措施对减少拉丁裔晚期癌症患者预先护理计划完成和临终护理方面明确记录的健康差异的影响。背景：本研究的目标是开发和优化一项干预措施，旨在解决拉丁裔晚期癌症患者参与预先护理计划 (ACP) 的障碍。由此产生的干预措施名为“规划您的预先护理需求”(PLAN)，以沟通能力和社会文化理论的理论模型为基础。材料和方法：PLAN 手册的初始版本是根据先前的干预措施 Ca-HELP 开发的，旨在改善癌症患者之间围绕疼痛的沟通。 PLAN 使用此框架来指导患者如何通过 ACP 计划和传达他们的临终护理需求。在本研究中，从主要利益相关者（n = 11 名患者、n = 11 名护理人员、n = 10 名专家）获得了对 PLAN 手册初步版本的反馈。参与者通过定量调查问题和半结构化定性访谈，对干预内容、格式、设计、方式和交付的可接受性和反馈进行评级。结果：结果表明，PLAN 手册被认为很有帮助且易于理解。所有利益相关者团体都喜欢包含明确的沟通脚本以及与亲人和医生就 ACP 进行对话的指导。提供了具体反馈来修改计划，以确保其针对拉丁裔患者进行优化和定制。一些患者指出回顾了 ACP 中的手册动机参与。结论：利益相关者的反馈产生了针对拉丁裔患者量身定制的优化的、以用户为中心的 PLAN 版本。未来的研究将检验这种干预措施的可接受性、可行性和潜在功效，以提高 ACP 的参与度。
The goal of this study was to develop an intervention designed to help improve engagement in advance care planning among Latino patients with advanced cancer. Specifically, this study aimed to include feedback from key users of the intervention—Latino patients with advanced cancers, their caregivers, and clinicians and researchers working with this population—to ensure it was optimized to meet the needs of this patient population. Results from this study were used to modify and improve this intervention to be tested in future research for its acceptability, usability, and ability to improve engagement in advance care planning among Latino patients. Future research is needed to demonstrate the intervention effects on reducing clearly documented health disparities in advance care planning completion and end-of-life care received among Latino patients with advanced cancer. Background: The goal of this study was to develop and optimize an intervention designed to address barriers to engagement in advance care planning (ACP) among Latino patients with advanced cancer. The resulting intervention, titled Planning Your Advance Care Needs (PLAN), is grounded in theoretical models of communication competence and sociocultural theory. Materials and Methods: An initial version of the PLAN manual was developed based on a prior intervention, Ca-HELP, that was designed to improve communication around pain among cancer patients. PLAN uses this framework to coach patients on how to plan for and communicate their end-of-life care needs through ACP. In the present study, feedback was obtained from key stakeholders (n = 11 patients, n = 11 caregivers, n = 10 experts) on this preliminary version of the PLAN manual. Participants provided ratings of acceptability and feedback around the intervention content, format, design, modality, and delivery through quantitative survey questions and semi-structured qualitative interviews. Results: Results indicated that the PLAN manual was perceived to be helpful and easy to understand. All stakeholder groups liked the inclusion of explicit communication scripts and guidance for having conversations about ACP with loved ones and doctors. Specific feedback was given to modify PLAN to ensure it was optimized and tailored for Latino patients. Some patients noted reviewing the manual motivated engagement in ACP. Conclusions: Feedback from stakeholders resulted in an optimized, user-centered version of PLAN tailored to Latino patients. Future research will examine the acceptability, feasibility, and potential efficacy of this intervention to improve engagement in ACP.
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影响因子：
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作者：
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DOI：
10.1177/1049909115584315
发表时间：
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影响因子：
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作者：
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影响因子：
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作者：
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通讯作者：
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