More than Tuskegee: Understanding Mistrust about Research Participation
More than Tuskegee: Understanding Mistrust about Research Participation
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DOI：
10.1353/hpu.0.0323
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发表时间：
2010-08-01
影响因子：
1.4
通讯作者：
Edwards, Dorothy
中科院分区：
文献类型：
--
作者：
Scharff, Darcell P.;Mathews, Katherine J.;Edwards, Dorothy
本文介绍了一项定性研究的结果，探讨了非洲裔美国成年人参与研究的障碍。一个有目的的抽样策略被用来确定非洲裔美国成年人和没有以前的研究经验。共举办了11个焦点小组。组的大小范围为4-10名参与者（N=70）。在我们的研究中，对医疗保健系统的不信任成为参与医学研究的主要障碍。不信任源于历史事件，包括塔斯基吉梅毒研究，并因卫生系统问题和歧视性事件而加剧，这些事件一直持续到今天。不信任是所有群体都表达的一个重要障碍，无论先前的研究参与或社会经济地位如何。这项研究说明了不信任的多方面性质，并表明不信任仍然是参与研究的一个重要障碍。研究人员应该采取战略，减少不信任，从而增加非裔美国人的参与。
This paper describes results of a qualitative study that explored barriers to research participation among African American adults. A purposive sampling strategy was used to identify African American adults with and without previous research experience. A total of 11 focus groups were conducted. Groups ranged in size from 4-10 participants (N=70). Mistrust of the health care system emerged as a primary barrier to participation in medical research among participants in our study. Mistrust stems from historical events including the Tuskegee syphilis study and is reinforced by health system issues and discriminatory events that continue to this day. Mistrust was an important barrier expressed across all groups regardless of prior research participation or socioeconomic status. This study illustrates the multifaceted nature of mistrust, and suggests that mistrust remains an important barrier to research participation. Researchers should incorporate strategies to reduce mistrust and thereby increase participation among African Americans.