'Distributed health literacy': longitudinal qualitative analysis of the roles of health literacy mediators and social networks of people living with a long-term health condition
'Distributed health literacy': longitudinal qualitative analysis of the roles of health literacy mediators and social networks of people living with a long-term health condition
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DOI：
10.1111/hex.12093
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发表时间：
2015-10-01
影响因子：
3.2
通讯作者：
Edwards, Adrian
中科院分区：
文献类型：
--
作者：
Edwards, Michelle;Wood, Fiona;Edwards, Adrian
背景一个人的社会网络在成为健康素养的过程中的作用还没有得到很好的理解。我们的目标是解释健康素养的“分布式”性质，以及长期患病的人如何利用他们的社交网络来支持健康素养相关的任务，例如管理他们的病情，设计本文报告了一项纵向定性访谈和观察研究，研究了长期患有慢性阻塞性肺疾病的人的健康素养的发展和实践。长期健康状况，居住在英国南威尔士。参与者来自健康教育团体（n = 14）和社区教育场所（n = 4）。44个访谈成绩单进行了分析，使用"框架“approaches.Results健康素养是通过家庭和社交网络分布，参与者往往借鉴他人的健康素养技能，寻求，理解和使用健康信息。那些传递健康知识技能的人充当健康知识调解人，并支持参与者对自己的状况进行更多的健康知识。健康知识普及的分布有助于参与者管理自己的健康，更加积极地参与保健决策过程，与保健专业人员沟通，并接受长期疾病。参与者通过个人和社区networks.Conclusion访问健康素养mediators分布式健康素养是一个潜在的资源管理一个人的健康，与卫生专业人员沟通，并作出健康决策。
Background The role of one's social network in the process of becoming health literate is not well understood. We aim to explain the 'distributed' nature of health literacy and how people living with a long-term condition draw on their social network for support with health literacy-related tasks such as managing their condition, interacting with health professionals and making decisions about their health.Design This paper reports a longitudinal qualitative interview and observation study of the development and practice of health literacy in people with long-term health conditions, living in South Wales, UK. Participants were recruited from health education groups (n = 14) and community education venues (n = 4). The 44 interview transcripts were analysed using the 'Framework' approach.Results Health literacy was distributed through family and social networks, and participants often drew on the health literacy skills of others to seek, understand and use health information. Those who passed on their health literacy skills acted as health literacy mediators and supported participants in becoming more health literate about their condition. The distribution of health literacy supported participants to manage their health, become more active in health-care decision-making processes, communicate with health professionals and come to terms with living with a long-term condition. Participants accessed health literacy mediators through personal and community networks.Conclusion Distributed health literacy is a potential resource for managing one's health, communicating with health professionals and making health decisions.