Is AIDS chronic or terminal? The perceptions of persons living with AIDS and their informal support partners
Is AIDS chronic or terminal? The perceptions of persons living with AIDS and their informal support partners
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DOI：
10.1080/09540120701203360
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发表时间：
2007-01-01
影响因子：
1.7
通讯作者：
Fredriksen-Goldsen, K. I.
中科院分区：
文献类型：
--
作者：
Hoy-Ellis, C. P.;Fredriksen-Goldsen, K. I.
仅仅在十年前，艾滋病毒/艾滋病还被视为一种绝症，而现在，艾滋病毒/艾滋病往往被描述为一种慢性但可控制的疾病。这项研究的目的是评估艾滋病患者及其非正式支助伙伴对疾病进程的看法，并确定区分对这一流行病的不同看法的主题。这项研究的结果表明，41%的艾滋病患者和39%的非正式支助伙伴认为艾滋病是慢性病。相比之下，37%的艾滋病患者和39%的非正式支助伙伴认为艾滋病是晚期而不是慢性病。在艾滋病毒/艾滋病感染者中，受教育程度较低和感觉到的基于种族的歧视程度较高的人更有可能将艾滋病视为绝症，而不是慢性病。此外，健康状况不佳的非正式支持伙伴比其他人更有可能将艾滋病视为晚期而不是慢性病。定性数据的内容分析揭示了与艾滋病的具体看法有关的五个广泛主题，包括药物治疗、个人经历、治愈、时间/可能性和教育。这些研究结果的影响进行了讨论。
Viewed as a terminal disease just a decade ago, HIV/ AIDS is now often characterized as a chronic yet manageable disease. The goal of this study is to assess the perceptions of the course of the disease among persons living with AIDS and their informal support partners and to identify the themes that distinguish the differing perceptions of the epidemic. The findings from this research reveal that 41% of persons living with AIDS and 39% of their informal support partners perceive AIDS as chronic. By contrast, 37% of persons living with AIDS and 39% of the informal support partners perceive AIDS to be terminal rather than chronic. Among persons living with HIV/ AIDS, those with lower levels of education and higher levels of perceived race- based discrimination were significantly more likely to view AIDS as a terminal rather than chronic condition. In addition, informal support partners in poor health were significantly more likely than others to view AIDS as terminal rather than chronic. Content analyses of the qualitative data revealed five broad themes related to the specific perceptions of AIDS, including medications, personal experience, cure, time/ eventuality and education. The implications of these findings are discussed.