Learning about long-term complications of pediatric type 1 diabetes: Parents' preferences
Learning about long-term complications of pediatric type 1 diabetes: Parents' preferences
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DOI：
10.1080/02739615.2015.1065742
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发表时间：
2016-10-01
影响因子：
0.9
通讯作者：
Bejarano, Carolina M.
中科院分区：
文献类型：
--
作者：
Buckloh, Lisa M.;Wysocki, Tim;Bejarano, Carolina M.
这项互联网研究调查了 321 名 1 型糖尿病青少年的父母，了解有关长期并发症 (LTC) 的家庭教育。家长报告了他们的 LTC 学习经历以及对 LTC 教育数量/时间的看法。家长们对 LTC 表示强烈担忧，但最初关注的是日常管理。大多数家长希望对孩子的长期护理教育有所投入，并支持采用多种方法来激励孩子的自我护理。家长认为，年幼儿童的长期护理教育应在诊断后推迟几个月，但父母和青少年的长期护理教育应在诊断后立即开始。尊重父母偏好的灵活方法可能是最佳选择。
This Internet study surveyed 321 parents of youth with type 1 diabetes about family education regarding long-term complications (LTC). Parents reported their LTC learning experiences and opinions about the amount/timing of LTC education. Parents reported intense worry about LTC, but focused initially on daily management. Most parents want input into their children's LTC education and endorsed diverse methods to motivate children's self-care. Parents felt that LTC education of younger children should be deferred for several months after diagnosis but that LTC education of parents and adolescents should begin soon after diagnosis. A flexible approach respecting parental preference is likely optimal.