Impact of dementia on caring for patients' diabetes
Impact of dementia on caring for patients' diabetes
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DOI：
10.1080/13607863.2011.569485
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发表时间：
2011-01-01
影响因子：
3.4
通讯作者：
Vickrey, Barbara
中科院分区：
文献类型：
--
作者：
Feil, Denise G.;Lukman, Revana;Vickrey, Barbara
目的：探讨痴呆症患者照顾者面临的挑战和糖尿病患者的生活质量问题。方法：对21名痴呆症和2型糖尿病患者的照顾者进行6个焦点小组的研究。使用软件编码系统对焦点小组进行数字记录、转录和翻译。确定并确认了突发事件主题。结果：出现了3个主题。(1)记忆丧失是导致照顾者干预的第一位自我照顾疏忽的原因。(2)痴呆症的行为和心理症状(BPSD)打乱了糖尿病的日常护理，最具破坏性的是否认患有糖尿病或记忆丧失(病感缺失)。(3)照顾者反映，同时照顾糖尿病和痴呆症是非常繁重的，感到BPSD不堪重负，需要来自家庭和患者保健提供者的更多支持。结论：痴呆症和糖尿病患者的照顾者面临着管理这两种情况和伴随的BPSD的巨大挑战。他们确定的从医疗系统获得更大反应的需求应该在针对这一被忽视但快速增长的人口的质量改进计划中得到检验。
Objective: To explore caregivers' challenges and quality-of-life issues managing diabetes in patients with dementia.Method: We conducted six focus groups with 21 caregivers of patients with dementia and type 2 diabetes. Focus groups were digitally recorded, transcribed, and translated using a software coding system. Emergent themes were identified and confirmed.Results: Three themes emerged. (1) Memory loss was the first identified cause of self-care neglect leading to caregiver intervention. (2) Behavioral and psychological symptoms of dementia (BPSD) disrupted the daily diabetes care routine, with 'denial' of having diabetes or memory loss (anosognosia) being the most disruptive. (3) Caregivers reported that caring for both diabetes and dementia was highly burdensome, felt overwhelmed with BPSD, and wanted more support from family and patients' healthcare providers.Conclusion: Caregivers of patients with dementia and diabetes face extraordinary challenges managing both conditions and the accompanying BPSD. Their identified need for a greater response from the healthcare system should be tested in quality improvement programs for this overlooked yet rapidly growing population.