Caring for caregivers and patients: Research and clinical priorities for informal cancer caregiving.
Caring for caregivers and patients: Research and clinical priorities for informal cancer caregiving.
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作者：
Kent EE;Rowland JH;Northouse L;Litzelman K;Chou WY;Shelburne N;Timura C;O'Mara A;Huss K
非正式/家庭护理人员是美国癌症患者护理的基本来源，但护理人员的群体、他们的任务、社会心理需求和健康结果尚不清楚。癌症护理及其提供方式的性质发生变化，随着幸存者数量的不断增长以及他们的护理人员的增加，需要更多地关注护理的角色和需求。本文回顾了国家癌症研究所和国家护理研究所召开的为期两天的会议上提出的当前证据，该会议旨在审查非正式癌症护理的科学状况。会议试图定义谁是非正式癌症护理人员，总结非正式癌症护理的科学状况，并描述为解决护理挑战而开发的干预措施以及用于评估其影响的各种结果。本文提出了在四个领域推动科学发展的建议：(1) 改进对非正式癌症护理的患病率和负担的估计； (2) 推进旨在改善癌症患者、护理人员以及患者与护理人员二人关系的干预措施的开发； (3) 制定并测试将护理人员纳入正规医疗机构的策略； (4) 促进使用技术来支持非正式的癌症护理人员。
Informal/family caregivers are a fundamental source of care for cancer patients in the United States, yet the population of caregivers, their tasks, psychosocial needs and health outcomes are not well understood. Changes in the nature of cancer care and its delivery, along with the growing population of survivors and by consequence, their caregivers, warrant increased attention to the roles and demands of caregiving. This paper reviews current evidence presented in a two-day meeting to examine the state of the science of informal cancer caregiving convened by the National Cancer Institute and National Institute for Nursing Research. The meeting sought to define who is an informal cancer caregiver, summarize the state of the science in informal cancer caregiving, and describe both the kinds of interventions developed to address caregiving challenges and the various outcomes used to evaluate their impact. This paper offers recommendations for moving science forward in four areas: (1) improve estimation of the prevalence and burden of informal cancer caregiving; (2) advance development of interventions designed to improve outcomes in cancer patients, caregivers, and patient-caregiver dyads; (3) generate and test strategies to integrate caregivers into formal healthcare settings; and (4) promote use of technology to support informal cancer caregivers.
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