Exploring the Effect of Autism Waiver Services on Family Outcomes
Exploring the Effect of Autism Waiver Services on Family Outcomes
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DOI：
10.1111/j.1741-1130.2011.00284.x
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发表时间：
2011-03-01
影响因子：
1.7
通讯作者：
Summers, Jean Ann
中科院分区：
文献类型：
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作者：
Eskow, Karen;Pineles, Lisa;Summers, Jean Ann
本研究探讨了通过马里兰州的家庭和社区为基础的服务医疗补助豁免自闭症儿童提供的服务对家庭相关的几个结果的影响，特别是家庭生活质量（FQoL）和就业。本研究的目的是评估通过马里兰州自闭症豁免提供的服务对家庭感知生活质量的影响，方法是比较马里兰州接受豁免服务的家庭与同一州登记在册的家庭（即，等待名单）的豁免服务。该州管理豁免计划的机构向723名豁免受益人和2,298个等待登记的家庭发出了邀请信和基于互联网的调查。返回了约861份调查（229份豁免，632份登记），总体回复率为28.8%（31.6%豁免，27.5%登记）。两个研究组都报告了对FQoL的满意度较低，两组中的大多数受访者都报告说，有一个患有自闭症的孩子会影响他们的就业。然而，研究结果表明，目前通过豁免接受服务的自闭症儿童家庭报告的FQoL高于那些没有通过豁免接受服务的家庭。作者指出，需要进行额外的研究，以充分了解豁免的最有效特征，包括豁免计划是否以及如何对家庭的生活质量，健康，参与学校，工作和休闲活动以及自决对这些结果的影响产生影响。
This study examined the effect of services provided through Maryland's Home and Community-Based Services Medicaid waiver for children with autism on several outcomes related to families, specifically family quality of life (FQoL) and employment. The purpose of this study was to assess the impact of the services provided through the Maryland autism waiver on families' perceived quality of life by comparing responses of families receiving waiver services in Maryland with families in the same state who were on the registry (i.e., a waiting list) for waiver services. An invitation letter and Internet-based survey were sent out to 723 waiver recipients and 2,298 families on the wait-list registry by the state's agency administering the waiver program. Some 861 surveys (229 waiver, 632 registry) were returned, yielding an overall response rate of 28.8% (31.6% waiver, 27.5% registry). Both study groups reported lower satisfaction with FQoL and the majority of respondents in both groups reported that having a child with autism affected their employment. However, the findings suggest that families of children with autism who currently receive services through the waiver report higher FQoL than those not receiving services through the waiver. The authors note that there needs to be additional research to fully understand the most effective features of the waiver, including whether and how waiver programs make a difference in families' quality of life, health, and participation in school, work and leisure activities, and the effect of self-determination on these outcomes.