An mHealth App to Support Caregivers in the Medical Management of Their Child With Cancer: Co-design and User Testing Study.
An mHealth App to Support Caregivers in the Medical Management of Their Child With Cancer: Co-design and User Testing Study.
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作者：
Mueller EL;Cochrane AR;Campbell ME;Nikkhah S;Miller AD
当他们的孩子被诊断出患有癌症时，照顾者面临着新的挑战和任务，这可能是压倒性的。移动技术有能力在他们的指尖上提供即时支持，以帮助跟踪症状、管理药物和规划紧急情况。本研究的目的是直接与最终用户和代理共同设计和创建一个移动技术应用程序，以支持护理人员对癌症儿童的医疗管理。我们直接与癌症儿童的护理人员和儿科肿瘤学护士协调员（代理最终用户）合作，共同设计和创建Cope 360移动健康应用程序的原型。Alpha测试是通过引导用户完成一系列预先确定的任务来完成的，这些任务涵盖了应用程序的各个方面，包括跟踪症状、管理药物、计划或练习需要在急诊室寻求治疗的医疗紧急情况。评估是通过记录的半结构化访谈和定量调查来完成的，以获取人口统计信息并测量系统可用性得分。使用NVivo （version 12; QSR International）对访谈进行转录和迭代分析。本研究包括8名癌症儿童护理人员（年龄33-50岁，大多数儿童接受化疗）和6名护士协调员，其中3名（50%）具有11 - 20年的护理经验。护理人员给出的平均系统可用性评分为89.4 （95% CI 80-98.8）。结果根据应用功能进行分组，评估重点是受欢迎的特定属性和需要改进的属性。需要改进的主要问题包括明确医疗信息和术语、改进任务设计、跟踪症状（包括调整某些按钮的外观和感觉）以及更改用于监测症状的可视化图形以包括日期锚点。Cope 360应用程序受到癌症儿童护理人员的好评，但在清晰度和视觉表现方面需要进一步改进。在完善后，需要在现实环境中对护理人员进行测试，以最终确定Cope 360应用程序，然后在随机对照试验中实施。
Caregivers face new challenges and tasks when their child is diagnosed with cancer, which can be overwhelming. Mobile technology has the capacity to provide immediate support at their fingertips to aid in tracking symptoms, managing medication, and planning for emergencies. The objective of this study is to engage directly with end users and proxies to co-design and create a mobile technology app to support caregivers in the medical management of their child with cancer. We engaged directly with caregivers of children with cancer and pediatric oncology nurse coordinators (proxy end users) to co-design and create the prototype of the Cope 360 mobile health app. Alpha testing was accomplished by walking the users through a series of predetermined tasks that encompassed all aspects of the app including tracking symptoms, managing medications, and planning or practicing for a medical emergency that required seeking care in the emergency department. Evaluation was accomplished through recorded semistructured interviews and quantitative surveys to capture demographic information and measure the system usability score. Interviews were transcribed and analyzed iteratively using NVivo (version 12; QSR International). This study included 8 caregivers (aged 33-50 years) of children with cancer, with most children receiving chemotherapy, and 6 nurse coordinators, with 3 (50%) of them having 11 to 20 years of nursing experience. The mean system usability score given by caregivers was 89.4 (95% CI 80-98.8). Results were grouped by app function assessed with focus on specific attributes that were well received and those that required refinement. The major issues requiring refinement included clarity in the medical information and terminology, improvement in design of tasks, tracking of symptoms including adjusting the look and feel of certain buttons, and changing the visual graph used to monitor symptoms to include date anchors. The Cope 360 app was well received by caregivers of children with cancer but requires further refinement for clarity and visual representation. After refinement, testing among caregivers in a real-world environment is needed to finalize the Cope 360 app before its implementation in a randomized controlled trial.
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影响因子：
7.4
作者：
Nasi G;Cucciniello M;Guerrazzi C
通讯作者：
Guerrazzi C
影响因子：
7.4
作者：
Bender JL;Yue RY;To MJ;Deacken L;Jadad AR
通讯作者：
Jadad AR
影响因子：
3.1
作者：
Dupuis, L. Lee;Sung, Lillian;van de Wetering, Marianne
通讯作者：
van de Wetering, Marianne
影响因子：
3.2
作者：
Mueller, Emily L.;Sabbatini, Amber;Gebremariam, Achamyeleh;Mody, Rajen;Sung, Lillian;Macy, Michelle L.
通讯作者：
Macy, Michelle L.
影响因子：
8
作者：
Baxter, Amy L.;Watcha, Mehernoor F.;Wyatt, Matthew M.
通讯作者：
Wyatt, Matthew M.