The effects of sickle cell disease on families in Togo
The effects of sickle cell disease on families in Togo
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DOI：
10.1016/s0929-693x(00)80128-1
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发表时间：
2000-06-01
影响因子：
1.8
通讯作者：
Nyadanu, M
中科院分区：
文献类型：
--
作者：
Assimadi, JK;Gbadoé, AD;Nyadanu, M
瞄准！- 为了解决镰状细胞病造成的困难，这项工作的目的是评估多哥患有镰状细胞病的儿童对家庭的影响。- 从1998年4月1日至11月31日，对洛梅教学医院儿科的镰状细胞病监护室随访的103个有一个或多个镰状细胞病患者的家庭进行了调查。调查了镰状细胞病患者的主要照顾者，尤其是母亲（占病例的90.3%）。- 许多父母感到不安，最常见的烦恼是：对孩子的同情（怜悯），92.2%;失眠，82.5%;沮丧，76.7%;和害怕孩子的死亡，73.5%。受教育程度较低的父母和独居者（单亲、寡妇、分居）受到的影响更大。镰状细胞病导致26对夫妇中有7对（26.4%）分居，而63对仍然生活在一起的夫妇中有11对关系恶化（17.5%）。83.3%的家长夸大了对孩子的保护，65%的家长提到了经济问题。- 毫无疑问，洛梅的一个家庭中有患有镰状细胞病的儿童，这将带来不幸的影响。为了减少患病儿童及其家庭的痛苦，应采取许多联合行动（C）2000版《医学科学》。
Aim. - In order to master the difficulties due to sickle cell disease, this work aimed at assessing the effects on the families of the presence of a child with sickle cell disease in Togo.Population and methods. - From April I to November 31, 1998, 103 families with one or many sickle cell patients followed up in the Sickle Cell Care Unit of the pediatric department of the Lome Teaching Hospital were surveyed. Main care takers of patients with sickle cell disease, especially mothers (90.3% of cases), were surveyed.Results. - Many parents were disturbed the most common troubles were: compassion (pity) toward the child, 92.2%; insomnia, 82.5%; frustration, 76.7%; and fear of the death of the child, 73.5%. Less educated parents and those who lived alone (single parents, widows, separated) were more affected. Sickle cell disease caused the separation of seven couples out of 26 (26.4%), while in 11 couples of the 63 who still live together relationships had deteriorated (17.5%). Most of the parents (83.3%) exaggerated the protection of their child and 65% mentioned financial problems.Conclusion. - There is no doubt about the unfortunate effects of the presence of children with sickle cell disease in a family in Lome. Many joint actions should be taken toward the sick children and their families in order to reduce their sufferings (C) 2000 Editions scientifiques ef medicales Elsevier SAS.