Quantitative and qualitative usage data of an Internet-based asthma monitoring tool

Quantitative and qualitative usage data of an Internet-based asthma monitoring tool
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DOI:
10.2196/jmir.6.3.e23
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发表时间:
2004-07-01
影响因子:
7.4
通讯作者:
Nielsen, L
Nielsen, L
中科院分区:
医学2区
文献类型:
--
作者:
Anhoj, J;Nielsen, L

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背景:2000年5月,阿斯利康为哮喘患者和医疗保健提供者推出了一项名为LinkMedica的网络服务,其中包括用于监测和自我管理的哮喘日记。在日记中,患者输入他或她的峰值流量,抢救药物的剂量,以及在过去24小时内是否有任何哮喘症状。患者立即收到LinkMedica的回复,告诉他或她哮喘是否得到控制,如果没有怎么办,例如,增加吸入类固醇的剂量。目的:本研究的主要目的是描述患者和医疗服务提供者使用LinkMedica的情况。第二个目标是评估他们对该系统的感知,以及用户与该系统的互动如何受到他们日常生活的影响。方法:分析网站注册用户数和日记使用情况。通过对用户(85人)的在线调查,对医疗服务提供者的邮寄问卷(131人,应答率26.8%),以及与10名患者和5名全科医生的深入访谈,进一步获得了关于用户感知的定量和定性数据。结果:2003年2月,共有7653名用户注册。2002年期间,注册用户平均每月增加50人。同期,每月的独立日记用户数量从307人减少到138人。患者通常会在很短的时间后停止使用日记;由于时间限制,医生不愿向患者介绍日记。结论:自行选择的调查回答和深入访谈表明,患者和医生普遍认为LinkMedica是一个值得信赖和可靠的网站。然而,用户对LinkMedica的积极看法与他们不愿使用该网站的时间超过短期之间存在反差。主要原因是LinkMedica由于技术和心理方面的原因不适合他们的日常生活。文中提出了一些改进LinkMedica的建议。
Background: In May 2000, AstraZeneca launched a Web service for asthma patients and health-care providers called LinkMedica, which includes an asthma diary for monitoring and self-management. In the diary, the patient enters his or her peak flow, number of doses of rescue medication, and if there have been any asthma symptoms during the previous 24 hours. The patient receives an immediate response from LinkMedica, telling him or her if the asthma is under control and what to do if not, eg, increase the dose of inhaled steroid. Health-care providers have access to the patient diary.Objectives: The primary objective of the study was to describe patients' and health-care providers' use of LinkMedica. Secondary objectives were to evaluate their perception of the system and how the users' interaction with the system is influenced by their everyday lives.Methods: Site statistics regarding number of registered users and diary usage were analyzed. An online survey among users (85 respondents), a mailed questionnaire to health-care providers (131 respondents; response rate 26.8%), as well as in-depth inter-views with 10 patients and 5 general practitioners, elicited further quantitative and qualitative data on users' perceptions.Results: In February 2003, a total of 7653 users had registered. During 2002, the growth in registered users averaged 50 per month. In the same period, the number of unique diary users per month decreased from 307 to 138. Patients usually stopped using the diary after a short time; the doctors were reluctant to introduce the diary to patients because of time constraints. Several user subtypes were identified among patients and their relatives.Conclusion: The self-selected survey responses and in-depth interviews indicated that LinkMedica is generally considered a trustworthy and reliable site by both patients and doctors. However, there was a contrast between users' positive perception of LinkMedica and their unwillingness to use the site for more than short periods. The primary reason for this was that LinkMedica did not fit into their everyday lives because of technical and psychological aspects. A number of recommendations to improve LinkMedica are suggested.