Children's Decision-Making Involvement About Research Participation: Associations With Perceived Fairness and Self-Efficacy.
Children's Decision-Making Involvement About Research Participation: Associations With Perceived Fairness and Self-Efficacy.
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DOI：
10.1177/1556264617696921
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发表时间：
2017-04
期刊：
影响因子：
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通讯作者：
Jawad AF
中科院分区：
文献类型：
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作者：
Miller VA;Feudtner C;Jawad AF
本研究的主要目的是检查儿童参与研究决策与他们对决策过程和自我效能的看法之间的关系。参与者是在前两个月参加研究的儿童（8-17 岁）。孩子们完成了一份调查问卷，产生了三个决策参与分量表：研究人员参与孩子；研究人员支持自治；和儿童参与。儿童报告了决策过程的公平性和与健康相关的决策自我效能。调整年龄后，研究人员参与儿童的得分越高，自我效能感越高，研究人员支持自主性的得分越高，感知的公平性越高。这些数据强调了在寻求同意时，研究人员与儿童就研究参与进行互动的潜在重要性，包括通过征求儿童的意见并传达他们在决策中的核心作用，主动让儿童参与决策，这对儿童来说可能比接收信息或签署表格更有意义。
The primary objective of this study was to examine the associations of children’s involvement in decisions about research participation with their perceptions of the decision making process and self-efficacy. Participants were children (ages 8–17) who enrolled in research studies in the prior two months. Children completed a questionnaire that yielded three decision making involvement subscales: Researcher Engages Child; Researcher Supports Autonomy; and Child Participates. Children reported on fairness of the decision making process and health-related decision self-efficacy. After adjusting for age, higher scores on Researcher Engages Child were associated with greater self-efficacy, and higher scores on Researcher Supports Autonomy were associated with greater perceived fairness. These data underscore the potential importance of researcher-child interactions about research participation when assent is sought, including proactively involving children in the decision by asking for their opinions and communicating their central role in the decision, which are likely to be more meaningful to children than receiving information or signing a form.