Lay and professional stakeholder involvement in scoping palliative care issues: Methods used in seven European countries
Lay and professional stakeholder involvement in scoping palliative care issues: Methods used in seven European countries
复制标题
非专业和专业利益相关者参与界定姑息关怀问题： 七个欧洲国家采用的方法
DOI：
10.1177/0269216316649154
复制
发表时间：
2017-02-01
影响因子：
4.4
通讯作者：
Oortwijn, Wija
中科院分区：
文献类型：
--
作者：
Brereton, Louise;Ingleton, Christine;Oortwijn, Wija
背景：利益相关者是对某个主题感兴趣的人。在国际上，利益攸关方参与姑息治疗研究和卫生技术评估需要发展。利益相关者的参与增加了整个研究的价值（从优先主题到传播研究结果）。关于让利益相关者参与研究的最佳方式，国际上的哲学和理解各不相同。7个国家（英国、德国、意大利、立陶宛、荷兰、挪威和波兰）的利益攸关方参与了这项工作。调查结果为一个项目提供了信息，该项目开发了卫生技术评估的概念和方法，并将其应用于评估姑息治疗服务交付模式。目的：报告利益相关者参与INTEGRATE-HTA项目以及如何识别问题为项目开发提供信息。设计：酌情在当地利用利益相关者协商或定性研究设计，七个国家的利益攸关方担任顾问，协助研究人员作出决策。主题分析被用来确定关键问题across countries.Setting/participants：共132个利益相关者（82名专业人士和50名外行人）年龄18岁参加了个人面对面或电话采访，咨询会议或focus groups.Results：不同的利益相关者参与方法被成功地用于确定姑息治疗的关键问题。共有23个共同的问题，三个或更多的国家知情的干预和比较的利益，子问题和具体的评估卫生technologyassessment.Conclusion：利益相关者，包括病人和家庭接受姑息治疗，可以告知项目决策使用各种参与方法，根据当地情况。研究人员应考虑当地对利益相关者参与的理解，因为对适当和可行方法的看法各不相同。利益攸关方参与的方法，特别是协商，需要进一步发展。
Background: Stakeholders are people with an interest in a topic. Internationally, stakeholder involvement in palliative care research and health technology assessment requires development. Stakeholder involvement adds value throughout research (from prioritising topics to disseminating findings). Philosophies and understandings about the best ways to involve stakeholders in research differ internationally. Stakeholder involvement took place in seven countries (England, Germany, Italy, Lithuania, the Netherlands, Norway and Poland). Findings informed a project that developed concepts and methods for health technology assessment and applied these to evaluate models of palliative care service delivery.Aims: To report on stakeholder involvement in the INTEGRATE-HTA project and how issues identified informed project development.Design: Using stakeholder consultation or a qualitative research design, as appropriate locally, stakeholders in seven countries acted as advisors' to aid researchers' decision making. Thematic analysis was used to identify key issues across countries.Setting/participants: A total of 132 stakeholders (82 professionals and 50 lay' people) aged 18 participated in individual face-to-face or telephone interviews, consultation meetings or focus groups.Results: Different stakeholder involvement methods were used successfully to identify key issues in palliative care. A total of 23 issues common to three or more countries informed decisions about the intervention and comparator of interest, sub questions and specific assessments within the health technology assessment.Conclusion: Stakeholders, including patients and families undergoing palliative care, can inform project decision making using various involvement methods according to the local context. Researchers should consider local understandings about stakeholder involvement as views of appropriate and feasible methods vary. Methods for stakeholder involvement, especially consultation, need further development.