The Return of Results of Deceased Research Participants
The Return of Results of Deceased Research Participants
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DOI：
10.1111/j.1748-720x.2011.00629.x
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发表时间：
2011-12-01
影响因子：
2.1
通讯作者：
Tasse, Anne Marie
中科院分区：
文献类型：
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作者：
Tasse, Anne Marie
直到20世纪中叶，生物医学研究一直以特定疾病的研究为中心，关注的是短时间内和一小群活着的研究参与者。然而，纵向人口研究的增长和长期的生物库建设现在迫使研究界研究其研究参与者死亡的可能性。研究参与者的死亡引发了许多伦理和法律问题，包括将已故个人的研究成果归还给相关家庭成员。随着在世研究参与者个人研究成果的返还，将死者研究成果返还给家人的义务问题尚未解决。这一问题在基因研究方面尤其尖锐，因为一个人的研究结果可能对所有亲生亲属的健康产生影响。
Until the mid-20th century, biomedical research centered on the study of specific diseases, concerned with short periods of time and small groups of living research participants. However, the growth of longitudinal population studies and long-term biobanking now forces the research community to examine the possibility of the death of their research participants.The death of a research participant raises numerous ethical and legal issues, including the return of deceased individuals’ research results to related family members. As with the return of individual research results for living research participants, the question of the obligation to return a deceased person’s research results to family members has yet to be settled. This question is particularly acute in the context of genetic research since the research results from one individual may have health implications for all biological relatives.