Impact of the COVID-19 pandemic on the well-being of children with neurodevelopmental disabilities and their parents
Impact of the COVID-19 pandemic on the well-being of children with neurodevelopmental disabilities and their parents
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DOI：
10.1111/jpc.15285
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发表时间：
2021-01-10
影响因子：
1.7
通讯作者：
Eapen, Valsamma
中科院分区：
文献类型：
--
作者：
Masi, Anne;Mendoza Diaz, Antonio;Eapen, Valsamma
目的：探讨新冠肺炎疫情对儿童心理健康、社会情绪和身体健康的影响(包括睡眠、饮食、运动、使用电子媒体；照顾者对儿童神经发育障碍症状和合并症的看法)、照顾者心理健康和幸福感、社会支持和服务利用的影响。方法：通过残疾服务提供者和支持团体分发在线横断面自述调查问卷。2-17岁新城疫患儿的照顾者被邀请回答有关儿童症状严重程度和幸福感、父母幸福感以及服务获得和满意度的问题。儿童平均年龄为9.7岁，男性占66.9%。64.5%的受访者报告儿童新城疫或共病心理健康症状恶化，76.9%的受访者报告儿童健康和幸福感受到新冠肺炎的影响。儿童看更多的电视和数字媒体(81.6%)，锻炼更少(68.0%)，睡眠质量下降(43.6%)，饮食更差(32.4%)。近五分之一(18.8%)的家庭报告给孩子的药物剂量增加了。家长反映新冠肺炎影响了自己的幸福感(76.1%)。超过一半的受访者(54.8%)对新冠肺炎期间得到的服务不满意，只有30%的人报告远程医疗对他们的孩子很好。结论：需要有针对性的干预措施，以解决日益恶化的儿童神经发育障碍、心理健康症状和不良的饮食、睡眠和锻炼模式。报告指出，改善了获得远程保健服务的机会，并进一步研究了有效远程保健服务的障碍和促进因素。
Aims: To examine the impact of COVID-19 pandemic on child mental health and socio-emotional and physical well-being (including sleep, diet, exercise, use of electronic media; care giver perceptions of symptoms of child neurodevelopmental disability [NDD] and comorbidities), and care giver mental health and well-being, social support and service use.Methods: An online cross-sectional self-report survey was distributed via disability service providers and support groups. Care givers of children aged 2-17 years with a NDD were invited to respond to questions on child symptom severity and well-being, parent well-being and service access and satisfaction.Results: Overall, 302 care givers (94.7% female) completed the survey. Average child age was 9.7 years and 66.9% were male. Worsening of any child NDD or comorbid mental health symptom was reported by 64.5% of respondents and 76.9% reported child health and well-being was impacted by COVID-19. Children were viewing more television and digital media (81.6%), exercising less (68.0%), experiencing reduced sleep quality (43.6%) and had a poorer diet (32.4%). Almost one fifth (18.8%) of families reported an increase in the dosage of medication administered to their child. Parents reported COVID-19 had impacted their own well-being (76.1%). Over half of respondents were not satisfied with services received during COVID-19 (54.8%) and just 30% reported that telehealth works well for their child.Conclusion: Targeted interventions are required to address worsening child neurodevelopmental disability, mental health symptoms and poor diet, sleep and exercise patterns. Improved access to telehealth services is indicated, as is further research on barriers and enablers of effective telehealth services.