Stress and uncertainty in parents of children with tracheobronchial malacia and stenosis
Stress and uncertainty in parents of children with tracheobronchial malacia and stenosis
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DOI：
10.1111/nicc.12413
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发表时间：
2019-11-01
影响因子：
3
通讯作者：
Wang, Kai-Wei K.
中科院分区：
文献类型：
--
作者：
Ho, Shing-Huey;Soong, Wen-Jue;Wang, Kai-Wei K.
背景：越来越多的儿童因气管支气管软化和狭窄而接受可屈性支气管镜检查，但与父母的压力和不确定性相关的研究很少。目的：探索和识别儿科重症监护病房气管支气管软化和气管支气管狭窄儿童的台湾父母与压力和不确定性相关的危险因素。方法：使用两种心理测量量表实施横断面研究设计：养育压力指数和家长对不确定性的认知量表。招募了被诊断患有气管支气管软化或/和气管支气管狭窄并在儿科重症监护病房接受支气管镜检查的台湾儿童（0-18岁/岁）的父母。该分析采用描述性统计和多变量线性回归。结果：招募了 90 名照顾 51 名儿童的家长。压力和不确定性得分都很高，并且彼此呈正相关。父母压力引起的四个风险因素是失业、父母的不确定性、孩子的气管支气管软化症和气管支气管狭窄以及使用氧气。结论：识别压力和不确定性的可能原因对于这一父母群体至关重要，特别是对于面临失业、不确定感以及照顾患有气管支气管软化症和气管支气管狭窄并需要吸氧的儿童的父母而言。与临床实践的相关性：护理实践可以重点关注为那些失业、表现出不确定感的父母提供更好的父母支持，并照顾患有气管支气管软化症和气管支气管狭窄的儿童以及其他医疗护理，例如呼吸症状管理、鼻饲和氧疗。
Background: An increasing number of children are undergoing flexible bronchoscopy because of tracheobronchial malacia and stenosis, but there is little research related to their parents' stress and uncertainty.Aim: To explore and identify risk factors associated with stress and uncertainty among Taiwanese parents of children with tracheobronchial malacia and tracheabronchostenosis in a paediatric intensive care unit.Methods: A cross-sectional study design was implemented using two psychometric scales: Parenting Stress Index and Parents' Perception of Uncertainty Scale. Parents of Taiwanese children (0-18 years/o) with a diagnosis of tracheobronchial malacia or/and tracheabronchostenosis who underwent bronchoscopy in a paediatric intensive care unit were recruited. The analysis used descriptive statistics and multivariable linear regression.Results: Ninety parents who were caring for a total of 51 children were recruited. Stress and uncertainty both scored high and were positively correlated with each other. Four risk factors arising from parental stress were unemployment, parental uncertainty, the child's tracheobronchial malacia and tracheabronchostenosis and use of oxygen.Conclusions: Identifying likely causes of stress and uncertainty is essential for this parental group, particularly for parents facing unemployment, feelings of uncertainty and caring for children with both tracheobronchial malacia and tracheabronchostenosis and requiring oxygen.Relevance to clinical practice: Nursing practice can focus on better parental support for those parents who are unemployed, show feeling of uncertainty and care for children with combined tracheobronchial malacia and tracheabronchostenosis and other medical care, such as breathing symptom management, nasogastric feeding and oxygen therapy.