Patients' need for information about cancer therapy.
Patients' need for information about cancer therapy.
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DOI：
10.1188/04.onf.313-319
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发表时间：
2004
影响因子：
1.9
通讯作者：
K. Skalla;M. Bakitas;C. Furstenberg;T. Ahles;J. V. Henderson
中科院分区：
文献类型：
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作者：
K. Skalla;M. Bakitas;C. Furstenberg;T. Ahles;J. V. Henderson
目的/注意事项为了获得关于癌症患者的偏好和他们对癌症治疗副作用信息的需求的详细信息，以设计交互式多媒体教育程序。设计定性。地区农村学术医疗中心。样本51名患者和14名患者配偶，他们目前正在接受或最近完成了癌症化疗或放疗。方法焦点小组。主要研究变量信息需求和常见的和令人痛苦的症状。患者希望获得有关治疗过程的信息，可能发生的具体副作用以及治疗对他们生活的影响。患者从各种来源寻求信息，但许多人发现其他患者是最有帮助的来源。尽管大多数患者希望获得尽可能多的信息，以便为发生的任何事情做好准备，但有些患者宁愿避免有关可能的副作用的信息。报告了与信息有关的若干障碍，包括与提供者联系、与提供者沟通困难、信息过载和保留问题。结论信息需求的几个方面证实了以前的研究结果，并阐明了新的方面。由此得出的结论是，多媒体技术提供了许多优势，以满足这些信息的需求。需要开发满足患者以及临床医生和教育工作者需求的患者教育新方法。
PURPOSE/OBJECTIVES To obtain detailed information about the preferences of patients with cancer and their need for information about side effects of cancer treatment to design an interactive multimedia educational program. DESIGN Qualitative. SETTING Regional rural academic medical center. SAMPLE 51 patients and 14 spouses of patients who either currently were undergoing or recently had completed chemotherapy or radiation therapy for cancer. METHODS Focus groups. MAIN RESEARCH VARIABLES Information needs and common and distressing symptoms. FINDINGS Patients wanted information about the process of getting treatment, specific side effects that might occur, and the impact of treatment on their lives. Patients sought information from a variety of sources, but many found that other patients were the most helpful source. Although most patients wanted as much information as possible so they would be prepared for whatever happened, some patients preferred to avoid information about possible side effects. Several obstacles related to information were reported, including access to providers, communication difficulties with providers, informational overload, and problems with retention. CONCLUSIONS Several aspects regarding information needs confirmed previous findings, and new aspects were illuminated. This led to a conclusion that multimedia technology offered many advantages to meet these informational needs. IMPLICATIONS FOR NURSING New approaches to patient education that will meet the needs of patients as well as clinicians and educators need to be developed.