Children's knowledge of cancer diagnosis and treatment: Jordanian mothers' perceptions and satisfaction with the process
Children's knowledge of cancer diagnosis and treatment: Jordanian mothers' perceptions and satisfaction with the process
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DOI：
10.1111/j.1466-7657.2011.00899.x
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发表时间：
2011-12-01
影响因子：
4.1
通讯作者：
Hamdan-Mansour, A. M.
中科院分区：
文献类型：
--
作者：
Arabiat, D. H.;Alqaissi, N. M.;Hamdan-Mansour, A. M.
背景资料：与孩子分享的关于他们的疾病的信息量，以及孩子有权知道的知识，在不同的文化中有很大的差异。目的：本研究旨在检查母亲对癌症诊断的沟通，孩子对自己的疾病了解多少，以及母亲对他们在沟通诊断时使用的方法的满意度。方法：采用半结构化访谈和开放式问题，51名母亲参加儿科肿瘤诊所在约旦进行了采访。内容分析被用来分析data.Findings：母亲表达了一系列的意见披露的形式，包括明确的诊断和治疗，是秘密的，但误解的帐户的疾病。被诊断患有癌症的儿童的中位年龄为11岁（四分位数范围为7-16岁）。大多数母亲在与孩子谈论癌症诊断方面没有得到任何帮助。那些发现很难把诊断结果告诉孩子的母亲们最终还是隐瞒了诊断结果。这些相同的母亲不高兴和不舒服的沟通方法，他们与children.Conclusion：本研究强调了护士的互动与他们的孩子诊断为癌症的患者的作用。护士不应该对孩子们如何以及需要了解他们的疾病有意见，最好应该在母亲和孩子之间的沟通过程中发挥积极作用。需要在这一领域开展进一步的工作和研究。
Background: The amount of information shared with children regarding their illness, as well as what knowledge children are entitled to know, varies widely among cultures.Aims: This study aims to examine mothers' accounts of communication about cancer diagnosis to their children, how much children knew about their illnesses and how satisfied the mothers were with the method they used in communicating the diagnosis.Methods: Using semi-structured interviews and open-ended questions, 51 mothers attending paediatric oncology clinics in Jordan were interviewed. Content analysis was used to analyse the data.Findings: Mothers expressed a range of views about the forms of disclosure, including being clear about the diagnosis and its treatment and being secretive yet misconceptualizing the accounts of the illness. The median age for the children diagnosed with cancer was 11 years (interquartile range 7-16 years). Most of the mothers were offered no help with talking to their children about cancer diagnosis. Mothers who found it difficult to tell the news of the diagnosis to their children finally withheld the diagnoses from them. Those same mothers were unhappy and uncomfortable with the communication method they had used with children.Conclusion: This study emphasized the role of nurses' interaction with their child patients diagnosed with cancer. Nurses should not have an opinion about how and what children need to know about their illness, and preferably should take an active role in the process of communication between mothers and their children. Further work and research are needed in this field.