Advocacy by Parents of Young Children With Special Needs: Activities, Processes, and Perceived Effectiveness
Advocacy by Parents of Young Children With Special Needs: Activities, Processes, and Perceived Effectiveness
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DOI：
10.1080/01488376.2014.896850
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发表时间：
2014-01-01
影响因子：
1.6
通讯作者：
Taylor, Sarah
中科院分区：
文献类型：
--
作者：
Wright, Amy Conley;Taylor, Sarah
本文探讨了父母的宣传幼儿残疾儿童使用的一个子集的数据来自一个更大的探索性和描述性的研究，对父母的宣传残疾儿童从出生到18岁的样本400名参与者。由于本文的重点是从出生到6岁的儿童的父母，只有父母（n = 76）符合这一标准的选择。数据是通过在线调查收集的，通过电子邮件列表和社交媒体团体产生了一个雪球样本。调查包括人口统计、宣传环境类型、宣传工作的有效性以及宣传工作成功的例子等问题。父母的倡导在学校、诊所、社会服务和社交媒体中最为常见，并涉及自我教育了解儿童的状况和获得服务的权利、教育包括专业人员在内的其他人以及坚持不懈的努力等过程。这些研究结果表明，为残疾儿童进行宣传的工作很早就开始了，从出生到6岁都很重要。政策和社会工作实践应该帮助父母提供支持，知识和技能，成为他们孩子的有效倡导者。未来的研究，建议探讨宣传，赋权，应对和弹性之间的关系，在有特殊需要的儿童的父母。
This article examines parental advocacy for young children with disabilities using a subset of data drawn from a larger exploratory and descriptive study on parental advocacy for children with disabilities from birth to age 18 with a sample of 400 participants. Because this article focuses on parents of children from birth to age 6, only parents (n = 76) meeting this criterion were selected. Data were collected through an online survey, with a snowball sample generated through e-mail lists and social media groups. The survey included questions on demographics, types of advocacy settings, perceived effectiveness of advocacy efforts, and an example of a successful advocacy effort. Parental advocacy was most common in schools, medical clinics, social services, and social media and involved processes such as educating oneself about the child's condition and rights for services, educating others including professionals, and making persistent efforts. These findings suggest advocacy on behalf of children with disabilities starts early and is important from birth to age 6. Policy and socialwork practice should help parents with support, knowledge, and skills to be effective advocates for their children. Future research is recommended to explore the relationships between advocacy, empowerment, coping, and resilience in parents of children with special needs.