Breathing Together: Children Co-constructing Asthma Self-Management in the United States.
Breathing Together: Children Co-constructing Asthma Self-Management in the United States.
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DOI：
10.1007/s11013-022-09766-5
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发表时间：
2023-06
期刊：
影响因子：
--
通讯作者：
Hunleth J
中科院分区：
文献类型：
--
作者：
Spray J;Hunleth J
美国的小儿哮喘管理主要以护理人员为中心。正如政策、临床文献和提供者实践中所表明的那样，这种以护理人员为中心的方法假设在医生、护理人员和儿童的特定关系配置内单向转移实践和知识。反映了更广泛的社会价值观和等级制度，儿童被定位为护理的被动接受者、未来公民的学徒以及父母的责任，他们将培训他们哮喘管理的知识和劳动。这些想法虽然有时相互矛盾，但导致儿童作为医疗保健参与者的系统性边缘化，从而在儿童纳入慢性病管理方面留下了概念上的空白：儿童在医疗保健中的角色是什么或应该是什么。我们通过询问来解决这一概念差距：当我们以儿童而不是护理人员为中心时，小儿哮喘管理会是什么样子？我们从密苏里州圣路易斯和佛罗里达州盖恩斯维尔的一项哮喘管理研究中提取数据，其中包括 41 名护理人员、24 名儿童和 12 名医疗保健提供者。通过让孩子们向我们展示他们如何治疗哮喘，我们发现孩子们在更广泛的护理相互依赖性和童年的结构性限制中积极地共同构建健康实践。
Pediatric asthma management in the U.S. is primarily oriented around caregivers. As evident in policy, clinical literature and provider practices, this caregiver-centric approach assumes unidirectional transfer of practices and knowledge within particular relational configurations of physicians, caregivers, and children. Reflecting broader societal values and hierarchies, children are positioned as passive recipients of care, as apprentices for future citizenship, and as the responsibility of parents who will train them in the knowledge and labor of asthma management. These ideas, though sometimes contradictory, contribute to a systemic marginalization of children as participants in their health care, leaving a conceptual gap regarding children’s inclusion in chronic illness management: what children’s roles in their health care are or should be. We address this conceptual gap by asking, what does pediatric asthma management look like when we center children, rather than caregivers in our lens? We draw data from a study of asthma management in St. Louis, Missouri, and Gainesville, Florida, which included 41 caregivers, 24 children, and 12 health-care providers. By asking children to show us how they manage asthma, we find that children actively co-construct health practices within broader interdependencies of care and the structural constraints of childhoods.
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DOI：
10.1016/j.jaci.2020.10.003
发表时间：
2020-12
期刊：
The Journal of allergy and clinical immunology
影响因子：
--
作者：
Expert Panel Working Group of the National Heart, Lung, and Blood Institute (NHLBI) administered and coordinated National Asthma Education and Prevention Program Coordinating Committee (NAEPPCC);Cloutier MM;Baptist AP;Blake KV;Brooks EG;Bryant-Stephens T;DiMango E;Dixon AE;Elward KS;Hartert T;Krishnan JA;Lemanske RF Jr;Ouellette DR;Pace WD;Schatz M;Skolnik NS;Stout JW;Teach SJ;Umscheid CA;Walsh CG
通讯作者：
Walsh CG
影响因子：
8
作者：
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通讯作者：
Ferrie, PJ
DOI：
10.1016/j.pedn.2018.08.012
发表时间：
2018-11-01
影响因子：
2.4
作者：
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通讯作者：
Carter, Bernie
影响因子：
5.4
作者：
Harris, Kelly M.
通讯作者：
Harris, Kelly M.
影响因子：
1.6
作者：
duRivage, Nathalie;Ross, Michelle;Fiks, Alexander G.
通讯作者：
Fiks, Alexander G.