The Psychosocial Impacts of Multimedia Biographies on Persons With Cognitive Impairments

The Psychosocial Impacts of Multimedia Biographies on Persons With Cognitive Impairments
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DOI:
10.1093/geront/gnp104
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发表时间:
2010-02-01
期刊:
影响因子:
5.7
通讯作者:
Marziali, Elsa
Marziali, Elsa
中科院分区:
医学1区
文献类型:
--
作者:
Damianakis, Thecla;Crete-Nishihata, Masashi;Marziali, Elsa

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目的:本研究旨在探讨阿兹海默症(AD)与轻度认知障碍(MCI)病患对个人化多媒体传记(MB)的反应。我们开发了一个程序,使用数字视频技术来构建基于DVD的MB的人与AD或MCI,记录他们的反应,观察他们的MB,并评估心理社会的好处。研究方法:一个由多媒体传记作家和社会工作者组成的跨学科小组采访了12名AD和MCI患者的家庭成员,并收集了档案材料,以最好地捕捉家庭和患者的生活史。我们拍摄了患者对观看MB的反应,并在首次观看后的3个月和6个月对家属和患者进行了随访。定性分析策略用于提取主题和关键问题,确定在拍摄和采访的反应数据。结果如下:对采访和视频数据的分析表明,唤起的长期记忆如何刺激回忆,为认知障碍者带来大部分快乐,但偶尔也会带来悲伤的时刻,帮助家庭成员记住和更好地理解他们的亲人,并刺激与家人的社交互动。成员和正式护理人员。寓意:这项研究表明,使用现成的数字视频技术,以产生MB,具有特殊意义的个人经历AD或MCI及其家庭的可行性。
Purpose: The purpose of this feasibility pilot project was to observe Alzheimer's disease (AD) and mild cognitive impairment (MCI) patients' responses to personalized multimedia biographies (MBs). We developed a procedure for using digital video technology to construct DVD-based MBs of persons with AD or MCI, documented their responses to observing their MBs, and evaluated the psychosocial benefits. Methods: An interdisciplinary team consisting of multimedia biographers and social workers interviewed 12 family members of persons with AD and MCI and collected archival materials to best capture the families' and patients' life histories. We filmed patients' responses to watching the MBs and conducted follow-up interviews with the families and patients at 3 and 6 months following the initial viewing. Qualitative analytic strategies were used for extracting themes and key issues identified in both the filmed and the interview response data. Results: Analysis of the interview and video data showed how evoked long-term memories stimulated reminiscing, brought mostly joy but occasionally moments of sadness to the persons with cognitive impairments, aided family members in remembering and better understanding their loved ones, and stimulated social interactions with family members and with formal caregivers. Implication: This study demonstrates the feasibility of using readily available digital video technology to produce MBs that hold special meaning for individuals experiencing AD or MCI and their families.