What people with aphasia want: Their goals according to the ICF

What people with aphasia want: Their goals according to the ICF
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失语症患者想要什么:根据 ICF 的目标

DOI:
10.1080/02687038.2010.508530
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发表时间:
2011
期刊:
影响因子:
2
通讯作者:
B. Davidson
B. Davidson
中科院分区:
医学3区
文献类型:
--
作者:
L. Worrall;S. Sherratt;P. Rogers;T. Howe;D. Hersh;A. Ferguson;B. Davidson

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背景:失语症患者的目标应该指导服务的提供。服务越来越受到国际功能、残疾和健康分类(ICF)(WHO,2001年)的影响,但对失语症患者的目标是否涵盖ICF的全部范围知之甚少。目的:本研究的目的是描述失语症患者的目标,并根据ICF对目标进行编码。方法和程序:采用定性描述性研究方法,对50名中风后失语症患者进行半结构化深入访谈。访谈进行了录像和逐字记录,然后使用定性内容分析进行分析。然后使用ICF对30%连续子样本的目标进行编码。结果和成果:确定了九大类目标。患有失语症的参与者希望回到中风前的生活,不仅要交流他们的基本需求,还要交流他们的意见。他们还希望获得有关失语症、中风和可用服务的信息;更多的语言治疗;更大的自主权;以及尊严和尊重。他们确定了参与社会,休闲和工作活动以及恢复身体健康的重要性。有趣的是,他们的目标包括想要帮助他人。目标可以与ICF内的所有ICF组成部分相关联,其中大部分与活动和参与相关联,其次是环境因素,身体功能和结构以及个人因素。结论:在这项研究中,失语症患者能够清楚地表达中风后的广泛目标,包括ICF的所有组成部分,但特别关注活动和参与组成部分。
Background: The goals of people with aphasia should guide service delivery. Services are increasingly influenced by the International Classification of Functioning, Disability and Health (ICF) (WHO, 2001), but little is yet known about whether the goals of people with aphasia span the full spectrum of the ICF. Aims: The purpose of this study was to describe the goals of people with aphasia and to code the goals according to the ICF. Methods & Procedures: A qualitative descriptive research approach was used involving semi-structured in-depth interviews with 50 participants with aphasia post-stroke. Interviews were videotaped and transcribed verbatim and then analysed using qualitative content analysis. The goals of a 30% consecutive subsample were then coded using the ICF. Outcomes & Results: Nine broad categories of goals were identified. Participants with aphasia wanted to return to their pre-stroke life and to communicate not only their basic needs but also their opinions. They also wanted information about aphasia, stroke, and available services; more speech therapy; greater autonomy; and dignity and respect. They identified the importance of engagement in social, leisure, and work activities as well as regaining their physical health. Interestingly, their goals included wanting to help others. Goals could be linked to all ICF components within the ICF, with the majority linked to Activities and Participation, followed by Environmental Factors, Body Functions and Structures, and Personal Factors. Conclusions: People with aphasia in this study were able to articulate a wide range of goals post-stroke that encompassed all of the ICF components but had a particular focus on the Activity and Participation components.