Disrupted social connectedness among Dominican women with chronic filarial lymphedema
Disrupted social connectedness among Dominican women with chronic filarial lymphedema
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DOI：
10.1016/j.pec.2007.06.015
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发表时间：
2007-11-01
影响因子：
3.5
通讯作者：
van den Borne, Bart
中科院分区：
文献类型：
--
作者：
Person, Bobbie;Bartholomew, L. Kay;van den Borne, Bart
目的：本文的目的是确定与多米尼加妇女慢性丝虫性脑水肿的完整或中断的社会联系相关的具体因素，并更好地了解中断的社会联系对她们生活的影响。方法：通过对28名丝虫病妇女的28次个别访谈和3次焦点小组讨论收集数据，多米尼加共和国的地方病地区，呈现出一条或两条腿的水肿。结果：慢性和急性应激源与水肿的严重程度汇合导致妇女依赖他人的社会支持。妇女描述的并发症的老龄化，残疾，减少社交网络，并无法坚持文化脚本作为贡献中断的social connecteds.Conclusion：社会脱节似乎加剧了负面后果的生活与女性之间的水肿。社会连通性和文化脚本往往定义一个超越身体畸形和残疾的妇女的社会角色，而中断的社会连通性有助于社会孤立，抑郁症状，和不良的健康outcomes.Practice影响：进一步的行为研究完整的社会连通性的弹性和应对的贡献是必要的，以制定有效的干预措施，为妇女。确定社会联系中断的妇女，并使她们参与行为干预，以加强自然社交网络，创造新的或增强的社会支持机会，可能会减轻社会脱节的负面影响，提高生活质量。(c)2007爱思唯尔爱尔兰有限公司保留所有权利。
Objective: The objectives of this paper were to identify specific factors associated with intact or disrupted social connectedness among Dominican women with chronic filarial lymphedema and better understand the impact of disrupted connectedness on their lives.Methods: Data were collected through 28 individual interviews and 3 focus group discussions of 28 women from filariasis-endemic areas of the Dominican Republic presenting with lymphedema of one or both legs.Results: The confluence of chronic and acute stressors with severity of lymphedema lead women to rely on others for social support. Women described complications of aging, disability, reduced social networks, and inability to adhere to cultural scripts as contributing to disrupted social connectedness.Conclusion: Social disconnectedness appears to exacerbate the negative consequences of living with lymphedema among women. Social connectedness and cultural scripts often define a social role for women that transcend physical deformity and disability, while disrupted social connectedness contributes to social isolation, depressive symptoms, and poor health outcomes.Practice implications: Further behavioral research into the contribution of intact social connectedness to resiliency and coping is warranted in order to develop effective interventions for women. Identifying women with disrupted social connectedness and engaging them in behavioral interventions to enhance natural social networks and create new or enhanced social support opportunities may mitigate the negative effects of social disconnectedness and improve quality of life. (c) 2007 Elsevier Ireland Ltd. All rights reserved.