)Meaning of disability and management of its visibility: A review of a qualitative inquiry on people with Oligodactyly
)Meaning of disability and management of its visibility: A review of a qualitative inquiry on people with Oligodactyly
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）残疾的含义及其可见性的管理：对寡指症患者定性调查的回顾
DOI：
10.1007/s12124-020-09597-2
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发表时间：
2021
影响因子：
1.2
通讯作者：
Masakuni Tagaki
中科院分区：
文献类型：
--
作者：
Tsutsumi;A.;田中聡子;Masakuni Tagaki
在这篇评论中，我讨论了目标文章（Sulaeman等人，2020）的贡献，并建议进一步研究身体残疾人的心理社会问题。目标文章的作者采用污名理论（Goffman 1963）和疾病叙述（Kleinmann 1988），定性分析了印度尼西亚农村少指（趾）畸形患者的残疾相关经历。首先，作者通过关注参与者身体器官的异常，有效地发现了参与者日常生活中次要经历的意义。少指畸形是可见的和轻微的，而不是其他残疾，如脊髓损伤。需要进行详细分析，以澄清残疾的影响。作者发现，他们的身体差异和障碍具有多方面的意义，而不仅仅是消极的。另一个发现是，“上帝”被称为一个中介人，连接不同的意义和地方，揭示不确定的经验。此外，我讨论了少指畸形的可见性取决于上下文，可见或不可见的二分法是不适合研究心理社会问题。我认为，轻度残疾的人面临着向他人透露他们的病情的困境。我的建议是进一步研究从长远的角度来审视残疾意义的发展，阐明意义的演变，通过参与者的家庭，社区和该村庄以外的地区的互动。文化心理学中的叙事概念，如布鲁纳（2002）的叙事思维模式，是有用的;叙事干扰了未来，过去和现在（Valsiner 2007）。
In this commentary, I discuss the contribution of the target article (Sulaeman et al. 2020) and suggest further study in terms of research on psychosocial issues of people with physical disabilities. The authors of the target article qualitatively analyzed the disability-related experiences of people with oligodactyly in a rural village in Indonesia, employing the theories of stigma (Goffman 1963) and illness narrative (Kleinmann 1988). First, the authors effectively found the meanings of the participants’ minor daily experiences by focusing on their physical organ abnormalities. Oligodactyly is visible and mild, rather than other disabilities such as spinal cord injury. A detailed analysis is required to clarify the effect of disability. The authors found that their bodily differences and disorders had multifaceted meanings rather than negative ones only. Another finding was that “God” was referred to as a mediator connecting diverse meanings and places revealing uncertain experiences. Additionally, I discuss that the visibility of oligodactyly depends on the context, and that visible or invisible dichotomy is not suitable for studying psychosocial issues. I argue that people with mild disabilities face the dilemma of disclosing their condition to others. My suggestion for further study is to examine the development of disability meaning from a long-term perspective to elucidate the meaning’s evolution through the participant’s interaction with family, community, and area outside that village. The concept of narratives in cultural psychology, such as Bruner (2002)‘s narrative mode of thinking, was useful; narrative was interfering with the future, past, and present (Valsiner 2007).