Essential Components of an Interstitial Lung Disease Clinic: Results From a Delphi Survey and Patient Focus Group Analysis.
Essential Components of an Interstitial Lung Disease Clinic: Results From a Delphi Survey and Patient Focus Group Analysis.
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DOI：
10.1016/j.chest.2020.09.256
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发表时间：
2021-04
期刊：
影响因子：
9.6
通讯作者：
PFF CCN Delphi Collaborators
中科院分区：
文献类型：
--
作者：
Graney BA;He C;Marll M;Matson S;Bianchi P;Cosgrove GP;Lee JS;PFF CCN Delphi Collaborators
间质肺部疾病（ILD）的患者需要在2013年建立了肺纤维化基金会（CCN），并确定的标准是指定的CCN，尽管这些标准是这些标准，但肺纤维化基金会的基本组成部分仍然是不明智的。
根据ILD物理专家，患者和护理人员，CCN中的ILD诊所如何结构化？
这项研究首先，对所有68个CCN站点进行了调查，以确定其当前的ILD诊所的特征，在线，在2019年10月进行了三轮修改的DELPHI调查共识的先验阈值是在第3轮中评估项目的75％以上。
四个类别（基础设施，资源和多学科会议）的40个项目对ILD诊所进行了共识，并确定了三个主要主题。
ILD诊所的基本组成部分是在身体专家和患者之间很好地结合的。
Management of patients with interstitial lung disease (ILD) requires subspecialized, comprehensive, multidisciplinary care. The Pulmonary Fibrosis Foundation established the Care Center Network (CCN) in 2013 with identified criteria to become a designated CCN site. Despite these criteria, the essential components of an ILD clinic remain unknown. How are ILD clinics within the CCN structured? What are the essential components of an ILD clinic according to ILD physician experts, patients, and caregivers? This study had three components. First, all 68 CCN sites were surveyed to determine the characteristics of their current ILD clinics. Second, an online, three-round modified Delphi survey was conducted between October and December 2019 with 48 ILD experts participating in total. Items for round 1 were generated using expert interviews. During rounds 1 and 2, experts rated the importance of each item on a 5-point Likert scale. The a priori threshold for consensus was more than 75% of experts rating an item as important or very important. In round 3, experts graded items that met consensus and ranked items deemed essential for an ILD clinic. Third, ILD patient and caregiver focus groups were conducted and analyzed for content to determine their perspectives of an ideal ILD clinic. Forty items across four categories (members, infrastructure, resources, and multidisciplinary conference) achieved consensus as essential to an ILD clinic. Patient and caregiver focus groups identified three major themes: comprehensive, patient-centered medical care; expanded access to care; and comprehensive support for living and coping with ILD. The essential components of an ILD clinic are well-aligned between physician experts and patients. Future research can use these findings to evaluate the impact of these components on patient outcomes and to inform best practices for ILD clinics throughout the world.
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影响因子：
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作者：
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通讯作者：
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影响因子：
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影响因子：
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影响因子：
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作者：
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通讯作者：
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DOI：
10.1164/rccm.200402-147oc
发表时间：
2004-10-15
影响因子：
24.7
作者：
Flaherty, KR;King, TE;Martinez, FJ
通讯作者：
Martinez, FJ