Harnessing the potential of community-based participatory research approaches in bipolar disorder.
Harnessing the potential of community-based participatory research approaches in bipolar disorder.
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DOI：
10.1186/s40345-016-0045-5
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发表时间：
2016-12
影响因子：
4
通讯作者：
CREST.BD
中科院分区：
文献类型：
--
作者：
Michalak EE;Jones S;Lobban F;Algorta GP;Barnes SJ;Berk L;Berk M;Hole R;Lapsley S;Maxwell V;Milev R;McManamy J;Murray G;Tohen M;Tse S;Sanchez de Carmona M;Johnson SL;ISBD Taskforce on Community Engagement;CREST.BD
尽管双相情感障碍 (BD) 研究的复杂性迅速增长，但该领域在改善生活质量 (QoL) 和症状结果、调整边缘化社区的治疗方法以及将研究见解传播到现实世界实践方面面临挑战。基于社区的参与性研究（CBPR）——研究人员和社区成员之间合作进行的研究——有助于解决其他健康状况中的类似差距。本文旨在提高 BD 研究中 CBPR 潜在益处的认识。本文是国际双相情感障碍协会 (ISBD) 社区参与工作组的成果，该工作组成员包括学术研究人员、医疗保健提供者、有 BD 生活经验的人员以及 BD 社区机构的利益相关者。两个专门从事社区参与 BD 研究的知名中心提供了 CBPR 实际行动的说明性例子：加拿大研究 BD 心理社会问题的合作研究小组 (CREST.BD) 和英国心理健康研究频谱中心。我们描述了 CBPR 的理念，然后介绍 BD 社区优先研究的四个核心研究领域：新的治疗方法、更全面的结果评估、消除耻辱以及增强对积极结果的理解。然后，我们描述 CBPR 对于推进每个研究领域的理想方式，并提供 CBPR 已成功应用于这些领域的具体示例。最后，我们指出 CBPR 在 BD 研究中应用的潜在挑战和缓解策略。我们相信 CBPR 方法对于 BD 研究界具有重大的潜在价值。双相情感障碍患者、他们的家人和支持者的观察和担忧显然代表了丰富的信息来源。 CBPR 方法为建立在社区利益相关者之间的优势多样性基础上的研究提供了协作、公平、赋权的方向。尽管这种方法具有潜在的优点，但 CBPR 尚未在 BD 研究领域广泛使用，这代表着错失了机会。
Despite the rapid growth in the sophistication of research on bipolar disorder (BD), the field faces challenges in improving quality of life (QoL) and symptom outcomes, adapting treatments for marginalized communities, and disseminating research insights into real-world practice. Community-based participatory research (CBPR)—research that is conducted as a partnership between researchers and community members—has helped address similar gaps in other health conditions. This paper aims to improve awareness of the potential benefits of CBPR in BD research. This paper is a product of the International Society for Bipolar Disorders (ISBD) Taskforce on Community Engagement which includes academic researchers, healthcare providers, people with lived experience of BD, and stakeholders from BD community agencies. Illustrative examples of CBPR in action are provided from two established centres that specialize in community engagement in BD research: the Collaborative RESearch Team to study psychosocial issues in BD (CREST.BD) in Canada, and the Spectrum Centre for Mental Health Research in the United Kingdom. We describe the philosophy of CBPR and then introduce four core research areas the BD community has prioritized for research: new treatment approaches, more comprehensive outcome assessments, tackling stigma, and enhanced understanding of positive outcomes. We then describe ways in which CBPR is ideal for advancing each of these research areas and provide specific examples of ways that CBPR has already been successfully applied in these areas. We end by noting potential challenges and mitigation strategies in the application of CBPR in BD research. We believe that CBPR approaches have significant potential value for the BD research community. The observations and concerns of people with BD, their family members, and supports clearly represent a rich source of information. CBPR approaches provide a collaborative, equitable, empowering orientation to research that builds on the diversity of strengths amongst community stakeholders. Despite the potential merits of this approach, CBPR is as yet not widely used in the BD research field, representing a missed opportunity.