A consensus statement on health‐care transition for childhood‐onset inflammatory bowel disease patients
A consensus statement on health‐care transition for childhood‐onset inflammatory bowel disease patients
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关于儿童期炎症性肠病患者医疗保健转型的共识声明
DOI：
10.1111/ped.15241
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发表时间：
2022
影响因子：
1.4
通讯作者：
et al.
中科院分区：
文献类型：
--
作者：
Kumagai H;Sugimoto K;et al.
炎症性肠病（IBD）是一种慢性复发性肠道炎症性疾病。包括日本在内的世界范围内，IBD的发病率正在增加，在所有受影响的患者中，约有25%在18岁之前被诊断出来。为了维持这类病人的健康，有计划地过渡到成人保健系统是必不可少的。日本以前的调查显示，成人胃肠病学家和儿童胃肠病学家在儿童发病IBD患者的卫生保健转变方面的知识和认知存在差距。2021-2022年，日本厚生劳动省举办了几次网络研讨会，讨论与IBD患者过渡护理相关的问题，作为其难治性疾病研究计划的一部分。参与研究的临床医生对儿童和成人患者的IBD治疗经验丰富。因此，这个由成人和儿童胃肠病学家组成的小组就“从儿科转移到成人护理”的问题达成了5项共识声明，并就“解决过渡护理（过渡计划）”的问题达成了9项共识声明。为了解决目前儿童发病IBD患者卫生保健过渡方面的差距，建议采用程序化的过渡方法，并在儿科和成人胃肠病学家之间建立更好的合作伙伴关系。希望这一共识声明将为制定适当的临床实践指南提供基础。
Inflammatory bowel disease (IBD) is a chronic relapsing inflammatory disorder of the intestine. The incidence of IBD is increasing worldwide, including Japan, and in approximately 25% of all affected patients it is diagnosed before 18 years of age. For the health maintenance of such patients, planned transition to adult care systems is essential. Previous Japanese surveys have revealed gaps between adult and pediatric gastroenterologists with regard to their knowledge and perception of health‐care transition for patients with childhood‐onset IBD. In 2021–2022, several Web workshops to discuss issues related to the transitional care of IBD patients were held by the Ministry of Health, Labour and Welfare of Japan as part of their program for research on intractable diseases. Clinicians experienced in IBD treatment for pediatric and adult patients participated. As a result, this panel of adult and pediatric gastroenterologists developed five consensus statements on the issue of “transfer from pediatric to adult care” and nine statements on the issue of “addressing transitional care (transition program).” To address current gaps in health‐care transition for childhood‐onset IBD patients, a programmed approach to transition, and better partnerships between pediatric and adult gastroenterologists are indicated. It is hoped that this consensus statement will provide a basis for the development of appropriate guidelines for clinical practice.